Posts


Fox Insight

The future of Parkinson’s research is in powerful hands. Yours.

Fox Insight is an online clinical study where people with Parkinson’s disease and their loved ones share information that could transform the search for better treatments. You can help shape the future of Parkinson’s research — but it’s going to take all of us, working together. You in?

https://foxinsight.michaeljfox.org/

 


Be prepared for a hospital visit

No one wants to go to the hospital, but sometimes it is necessary.

Here are some ways to be prepared

Aware in care kit
To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.

Aware in Care kits can be requested from your local Parkinson’s Foundation Chapter or Center of Excellence. If you do not live in an area with a Chapter or center, you can order a kit online.

http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/Patient-Safety-Kit

Vial of life

Everybody should have a Vial of Life form filled out. The Vial of Life is a smart way to have your medical information on hand just in case of an emergency. Seniors need this because of their constant medical changes and medications… It’s the right thing to do.

Put one in your wallet, in your glove compartment, and especially on your refrigerator door

Print a kit http://www.vialoflife.com/print-free-vial-kits/

Print a decal to put on your door and refrigerator http://www.vialoflife.com/print-free-vial-kits/


Dance Through Parkinson’s Testimonials

​​The​re are ​many reasons that I enjoy participating in the Dancing ​Through Parkinson’s program. ​Here is my list:

​The brain can be changed by doing new activities. Dancing requires concentration and coordination, which help​s my brain​ stay sharp​. My neurologist is very pleased with my stable condition and says to keep up the exercise, including D​TP. T​his is just as important as ​​my medications, in ​her opinion.

I enjoy meeting the other ​people with Parkinson’s. D​TP provides a support group atmosphere, even though that was not the original intention of the program.

Rachelle ​brings a sense of joy to the class by playing interesting music and making the class fun and exciting . Th​e class always ​leaves me feeling uplifted.

Jud Eson – Dance Participant


Dance for Parkinson’s was something I didn’t have much interest in, especially since I couldn’t dance before I was diagnosed with Parkinson’s Disease (PD) 11 years ago.  Through the cajoling of friends, I hesitantly went perhaps a month after the classes had started.  I was amazed by the positive energy that the instructor exuded and the physical/emotional benefit was measurable.  The class benefits  those who have extreme limitations and to those who have been recently diagnosed.  Since Rachelle’s most recent training in NYC with the Mark Morris Dance Group, the class has seen a higher focus on fine motor skills, gait training, coordination, and balance exercises, which translates into real life benefits of dressing one’s self without help, walking, typing, thinking, and the general well being of individuals who have been inflicted by PD. Beyond the physical benefits, I spoken to a number of people in the class whereby Dance for PD is their only social outlet for the week.
While the class is being partially subsidized by the local PD support group, the weekly cost of $5 may seem at first glance as “affordable”, one must remember that generally speaking, PD patients are older and typically on a fixed income.  In my case, the impact of PD has forced me to stop working, and I too am now on a fixed income. It would be my hope that the making the Dance for PD class free would allow class size to grow with many of these PD dancers being able to experience the benefits of the Ciccotti Center.   Making the PD Dance class free would make it available to more PD patients.
While medical breakthroughs have been limited, exercise in any format has shown to slow down the progression of PD by as much as 30%.

Patrick Klee – Dance Participant


I would like to thank the Ciccotti Center for hosting this class! It is one of the activities I truly look forward to attending on a regular basis.
I was diagnosed with Parkinson’s Disease (PD) almost 20 years ago. For me, the best thing is exercise… all different forms of exercise and movement. The variety for me is important.
Besides taking the Dance/Movement class I also take a (non-contact) boxing class and a spin class (stationary bike). The dance class to me is like a PD Support Group. We get together, chat, take the class, and then chat more. This is one of the few places I feel comfortable to make mistakes and not over think about my symptoms. We are a group of like individuals taking the class with
limited opportunities to have the camaraderie of others in public. This class gives that to us. The smiles, laughter, and joy that emit from the room can be amazing. I appreciate this opportunity to let you know how grateful I am of the Cicotti Center’s support.

Bruce Plotsky – Dance Participant


Channeling Dance to Keep Moving with Parkinson’s

“Seven years ago, I was diagnosed with Parkinson’s disease, for which there is still no cure. I had but two options, I could live in fear, or I could scare myself healthy. I scared myself healthy, and so can you.”

Exercise is an important part of healthy living for everyone. For people with Parkinson’s disease (PD), exercise is more than healthy — it is a vital component to maintaining balance, mobility and activities of daily living. Exercise and physical activity can improve many PD symptoms. These benefits are supported by research.

Read more


According to a study published in Frontiers in Human Neuroscience Journal, dancing, especially when followed by a change in choreography, is superior to repetitive physical activities such as walking or cycling.

People who are physically active can slow down their brain’s aging process. Neuroscientists behind this study say that dancing is the most effective physical activity.

In their study, they prove that 2 different types of physical activity, dancing and endurance training  both increase the brain’s area that declines over time as we age. But, only dancing has proved to be effective when it comes to changes in behavior due to the noticeable improvements in balance.
The researchers selected 52 elderly volunteers aged 63-80 years for the purpose of the study. Then, they divided them randomly into two groups, one group was assigned to join dance classes, and the other group joined the sports control group.
The dance group took dance lessons with a constant change of choreography which moves they were asked to memorize. The program for the sports group, on the other hand, consisted of strength training, endurance training, and flexibility training.
The hippocampus area of the brain which is the most susceptible to decline because of the aging processes has increased in both groups. This area of the brain is also responsible for memory, balance, as well as learning.
But, only volunteers in the dance group had an increased volume of other subparts in the left hippocampus. Moreover, only dancing had increased the volume of one part in the right hippocampus called the subiculum.
This study proved that dancing, especially when followed by a change in choreography, is indeed superior to repetitive physical activities such as walking or cycling.


More than 35 peer reviewed scientific research studies conducted at a number of major university research centers around the world including Roehampton University, University of Florida, Queensland University of Technology, York University and the University of Freiburg point to the benefits of dance for people with Parkinson’s. A number of leading neurologists and movement disorder specialists around the world include Dance for PD classes among a shortlist of recommended activities for their patients.


Do you have a testimonial to add?


Speech and Swallowing in Parkinson’s Disease

In addition to the classic motor symptoms of Parkinson’s (tremor, slowness, stiffness, walking and/or balance problems), a person may develop changes in speech and/or swallowing. Although these problems can occur at any time in the course of Parkinson’s, they are more common as disease progresses.

Speech and swallowing therapy exercises, combined with Parkinson’s medication adjustment and, if necessary, dietary and/or behavioral modifications are the mainstays of management. Read more at https://www.michaeljfox.org/understanding-parkinsons/living-with-pd/topic.php?speech-swallowing

LSVT LOUD LSVT LOUD is an effective speech treatment for people with Parkinson’s disease (PD) and other neurological conditions.  Named for Mrs. Lee Silverman (Lee Silverman Voice Treatment), a woman living with PD, it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations. LSVT LOUD trains people with PD to use their voice at a more normal loudness level while speaking at home, work, or in the community. Read more at https://www.lsvtglobal.com/LSVTLoud


Where are we with surgery for PD?

WPC BLOG 
Elena Moro, MD, PhD is a Professor of Neurology at Grenoble Alpes University in Grenoble, France. Elena Moro was a speaker at the 3rd World Parkinson Congress in Montreal, and she is a current member of the Program Committee for the 5th World Parkinson Congress in Kyoto, Japan.

WHERE ARE WE WITH SURGERY FOR PD?
I have had the privilege to be involved in surgery to treat Parkinson’s disease (PD) for over 20 years. I still remember the first patients with severe advanced PD who had deep brain stimulation (DBS) surgery in the early 90’s. After a lot of suffering, these patients could have a decent life back: no more violent dyskinesia or very painful and disabling dystonia, no more horrible tremor and motor fluctuations. It really was like a miracle! I also still remember the hours spent in the operating room to test treatment efficacy and side-effects…. A great team effort, but so rewarding for everybody!

Read more at https://www.worldpdcongress.org/home/2018/11/27/where-are-we-with-surgery-for-pd


Dear Parkinson’s

Dear Parkinson’s,

December 12th will be the sixth anniversary of our official, diagnosed, life together, although we were getting to know each other years before that.  I feel that our relationship is progressing. I remember when we met among the nerve cells of the substantia nigra. By the time we were officially diagnosed, we had already lost 80 percent of our dopamine-producing cells.  If it’s all right with you, I would like to name the surviving dopamine cells to let them know that they are needed and loved and should stick around.

Do you think we should get an anniversary present for each other? Metal or wood is traditional for the sixth anniversary, but I can’t think of anything made of wood or metal that I would want.  I have an idea. We could get masquerade costumes. Parkinson’s has already given me a mask to go with the costume, due to decreased facial expression. There are some gifts you have given me that I would like to return; I don’t really need them.  Are there gift receipts for these things I got from you? I would like to box up and return muscle rigidity, stiffness in the arms, shoulders and neck, voice changes and unsteady walking. If you’re willing to take those back, I’m sure I could find a few more.

On the other hand, there are some other things you have given me that I love and wouldn’t mind more of:

Give me more flexibility in adjusting to change.  There are parts of my life I have no control over.  Every day poses unique challenges and I need to be able to quickly shift course.

Remind me, Parkinson’s, to have a positive attitude. Choosing to have a positive attitude impacts my relationships with others and how I take care of myself.

Keep teaching me compassion.  You may have changed my way of moving, working and living, but you also taught me to have compassion, empathy and appreciation for those affected by all types of illness.

And, Parkinson’s, let’s keep being open and unashamed about what you give me.  This openness has lead to wonderful friendships, and a most supportive community.

You can continue to give me the gift of gratitude. I believe that you have increased my gratitude for the simple things in life that are often taken for granted.

So Parkinson’s, like so many relationships, we have had good times and weathered some bad times.  May we continue in our journey together for many years to come.


Combatting depression

Mental health is extremely important in PD. Although common in other chronic diseases, research suggests that depression and anxiety are even more common in PD. It is estimated that at least 50 percent of those diagnosed with PD will experience some form of depression during their illness, and up to 40 percent will experience an anxiety disorder. 

The Parkinson’s Foundation Parkinson’s Outcomes Project found that taken together, mood, depression and anxiety have the greatest impact on health status, even more than the motor impairments commonly associated with the disease. 

Read more http://parkinson.org/Understanding-Parkinsons/Symptoms/Non-Movement-Symptoms/Depression


Thomas Allen 1940 – 2018

Tom and Patty Allen were active members of our group.

Thomas M. Allen, 77, of Rexford, died peacefully at home surrounded by his loving family on Sunday evening, November 25, 2018, after a 30-year battle with Parkinson’s Disease.  Tom was born in Tannersville, NY to Harold Allen and Suzanne Worth Speenburg.  

He is survived by his loving wife of 54 years, Patricia; sister Jeanne Allen, sons Thomas Allen (Mary Doherty); David Allen, Brian Allen; and three grandchildren, Morgan, Greta and Carter.  Tom was a devoted and beloved son, brother, husband, father, friend and mentor. He was an active member of the community throughout his life, and was a communicant of St. Mary’s Church in Crescent. He enjoyed coaching his sons’ baseball, football and basketball teams, gardening and dancing with his wife and he was an avid hunter and fisherman.

Tom graduated from Hunter-Tannersville High Schooland obtained degrees in Civil Engineering and Environmental Engineering from the University of Vermont and Rensselaer Polytechnic Institute.  Tom served as an Army Aviator in the 101st Airborne from where he served in many leadership positions before being Honorably Discharged as a 1st Lieutenant in 1966. Tom’s work as a professional engineer focused on improving water and air quality with the NYSDEC, where he served as Director for the Division of Air Resources from 1988-1995. He was instrumental in the development of the 1990 Clean Air Act Amendments. During this time Tom also served as the President of the State & Territorial Air Pollution Program Administrators (STAPPA) and led the efforts of Northeast States for Coordinated Air Use Management (NESCAUM).  Tom was awarded the Air & Waste Management Association’s S. Smith Griswold award in 1996, which is a national award given to an individual who has outstanding accomplishments in the prevention and control of air pollution. In retirement, Tom co-founded an environmental consulting business, Air Resources Group and for over a decade worked throughout the country as an instructor for the California Air Resources Board training new staff in air program activities. Tom loved music and dancing with his wife Patty, which they did at home and during their travels together across the country.

Calling hours will be held on Sunday, December 2nd, from 3 to 6 p.m. at the Catricala Funeral Home, 1597 Route 9 in Clifton Park, with a funeral service on Monday at 9:30 a.m. at St. Mary’s Church in Crescent. Burial will be in Saratoga National Cemetery following the funeral service at 11:30.

In lieu of flowers, donations may be made to The Michael J. Fox Foundation,
P.O. Box 5014, Hagerstown, MD 21741-5014, or to the Community Hospice of Saratoga, 179 Lawrence St., Saratoga Springs, NY 12866.


Parkinson’s Disease Vaccine Shows Preclinical Promise

from https://labiotech.eu/medical/united-neuroscience-parkinsons-vaccine/
The biotech company United Neuroscience has developed a candidate Parkinson’s disease vaccine that targets a protein linked to the condition.

The vaccine teaches the immune system to attack aggregations of alpha-synuclein. When this protein aggregates in neurons, it can lead to several neurodegenerative disorders, including Parkinson’s.

In United Neuroscience’s preclinical study, the vaccine was able to prevent the protein from aggregating in cell cultures, in mice and in post-mortem brain tissue of patients with Parkinson’s, Lewy body dementia and multiple system atrophy.

The company, headquartered in Dublin, has not specified when the vaccine might go to the clinic. As alpha-synuclein is involved in other diseases such as Lewy body dementia and multiple system atrophy, this vaccine could target several diseases in the clinic.

United Neuroscience has used the same platform to make a vaccine against Alzheimer’s disease, which is currently being tested in Phase II, with results expected at the end of this year.

There are companies that have Parkinson’s immunotherapies in the clinic already. Earlier this year, Affiris, an Austrian biotech, reported good safety results for its own alpha-synuclein vaccine in 24 patients in Phase I. Another Irish company, Prothena, in partnership with Roche, is running a Phase II trial with a different approach: injecting alpha-synuclein antibodies directly into patients.


Course:  Balanced Resilience for Family Care Partners – Every Wednesday • January 30th – March 20

Offered by Davis Phinney Foundation

Read more

What: This is an eight-week, live and online course you can attend from home. You will learn simple, evidence-based skills to make being a Parkinson’s care partner more sustainable so you can take better care of yourself and your person with Parkinson’s.When: Every Wednesday • January 30th – March 20
1-2:30 pm PST (4-5:30 pm EST)

Who: This is especially for Parkinson’s care partners

Cost: FREE

Instructor: Judy Long, outpatient palliative care chaplain at UCSF

Register: Enrollment is limited to 20 Parkinson’s care partners. If you want to secure your spot, please email us at blog@dpf.org.


Book: The Power of Habit: Why We Do What We Do in Life and Business – by Charles Duhigg,

If we want to reach a goal, we may need to develop or change habits.  This book will help us understand how to do that.

A young woman walks into a laboratory. Over the past two years, she has transformed almost every aspect of her life. She has quit smoking, run a marathon, and been promoted at work. The patterns inside her brain, neurologists discover, have fundamentally changed.

https://www.washingtonpost.com/news/inspired-life/wp/2015/03/02/expert-ten-super-smart-ways-to-build-good-habits-and-make-them-stick/

https://www.goodreads.com/book/show/12609433-the-power-of-habit

https://en.wikipedia.org/wiki/The_Power_of_Habit

 

 


Blocking Inflammasome-induced Neuroinflammation in Parkinson’s Disease with a Potent, Orally Available Small Molecule

Parkinson’s Disease Drug That Cools “Brains on Fire” Could Enter Human Trials in 2020

Study Rationale:
Our brains are full of immune cells called microglia, which fight infections and clear the brain of toxic products. In Parkinson’s disease, these cells are constantly active, leading to brain inflammation that damages neurons (nerve cells). Evidence of this inflammation is found in the blood and brains of Parkinson’s patients. To fight this damage, we developed small molecules (suitable to be be taken as a pill) that get into the brain, where they stopped brain inflammation in pre-clinical models of the disease. We hope this treatment could halt or even reverse Parkinson’s progression.

Hypothesis:
There are many different possible causes of Parkinson’s involving age, genetics, diets and lifestyle. Whatever the cause, we think our immune system’s response to produce inflammation in the brain is a key factor that drives Parkinson’s disease, and small molecule drugs that can penetrate the brain and stop this inflammation may be able restore the health of our brain immune cells, so they can get back to ‘cleaning up’ brain toxins.

Read more https://www.michaeljfox.org/foundation/grant-detail.php?grant_id=1521

https://www.sciencedaily.com/releases/2018/10/181031141520.htm

https://www.businesswire.com/news/home/20181031005717/en/Inflazome-Validation-New-Target-Parkinson%E2%80%99s-Disease

 

 


How Do I Know If I’m Doing the Right Exercise for Parkinson’s Disease?

Recent literature strongly suggests that exercise has a therapeutic benefit for people with Parkinson’s disease (PD). There is evidence of benefits from varied types of exercise such as Tai Chi, treadmill training, boxing, progressive resistance training and adapted tango. It can be confusing to understand which type of exercise is optimal for you and how often you need to be exercising.

Read more

https://www.michaeljfox.org/foundation/news-detail.php?how-do-know-if-doing-the-right-exercise-for-parkinson-disease

 


Ulster County Support Group – Kingston

Ready, Steady, Go!

 

Parkinson’s Disease Support Group in Kingston

Join others who are diagnosed with PD. Learn to cope with PD’s challenges in a fun, supportive, peer-led group that focuses on stress management through mindfulness, gentle movement, music, and humor.

 

This group will give participants an opportunity to:

  • Talk about the impact of PD on everyday life in a safe, respectful environment.
  • Learn from others and share useful written, community and on-line resources
  • Use methods such as deep breathing, mindfulness meditation, music and laughter to achieve improved mental health
  • Try gentle chair exercises to help with dexterity, flexibility, facial expression and vocal strength.

 

Important: Participation in occasional low stress exercise is optional. Those who choose to participate should only do so at a pace which is manageable and approved by the treating physician. 

 

Contact: Teresa Joseph (845)339-9090 ext. 2206

Location: MHA in Ulster, 300 Aaron Court, Kingston, NY

Time/Date: Thursdays 2:30pm-3:30pm, starting summer 2018

Group type: Open/Drop-in, Support

 


How to Talk So Your Doctor Will Listen

from

https://www.aarp.org/health/healthy-living/info-2016/talk-to-doctor-patient-relationship.html

Learn these tips before your next appointment
by Amy Paturel, AARP Bulletin, Jan./Feb. 2017 | Comments: 15

Be prepared for your next doctor’s visit with these helpful tips.

If you’ve ever felt like your doctor isn’t listening to you, it may be true. Studies have found that doctors let patients speak for only 23 seconds on average before cutting them off; in one University of South Carolina study, primary care patients were interrupted just 12 seconds after the physician entered the exam room.

When there’s less doctor-patient dialogue, patients are not only more likely to leave the office frustrated, but they’re also at greater risk of being misdiagnosed. Want to make up for the time crunch? Try these strategies to maximize your office visit and talk so your doctor will listen.

Make a human connection
Before you dive into your concerns, break the ice with a greeting or even a joke. “Doctors are people first, and we’re much more receptive when a patient begins a conversation with a simple, ‘How’s your day going?’ ” explains Katie Neuendorf, M.D., medical director for the Center of Excellence in Health Care Communication at the Cleveland Clinic.

Stay on message
Most doctor visits last 13 to 16 minutes, according to Medscape’s 2016 “Physician Compensation Report,” so after your greeting, get to the point. “Oversharing information unrelated to your medical concerns takes time away from tailoring a treatment plan,” Neuendorf says.

Tell the whole truth
You can’t expect a doctor to listen to your complaints, or adequately resolve them, if you’re not forthright. Tell your doctor about your fear of falling, substance abuse, sexual dysfunction or changes in sleep patterns.

Rehearse before you go
If you’re uncomfortable discussing embarrassing topics, write a script and rehearse it in front of a mirror. Use words like incontinent, bowel movements and diarrhea so that when you’re talking to the doctor, you’ll be more comfortable saying them aloud.

Don’t accept ‘it’s just aging’
If you have a symptom that has come on suddenly, keeps you up at night or interferes with your daily life, be specific about the changes you’ve noticed. “For example, you could say, ‘I’ve always been on time for appointments, but lately I’m forgetting them entirely. Is there a test you can do to rule out a more serious cognitive issue?’ ” says Mary Jane Minkin, M.D., clinical professor in the Department of Obstetrics, Gynecology and Reproductive Sciences at Yale Medical School.

Don’t save questions for the end
Once your doctor is halfway out the door, he or she is already thinking about the next patient. Instead, come with a list of concerns and address them within the first few minutes of your visit, Minkin suggests.

Explain what you can afford
Most doctors don’t have a clue about patients’ out-of-pocket costs. Some aren’t even sure which procedures, prescriptions and lab tests are covered by insurance or Medicare. “But that doesn’t mean they’re not willing to work with you to lower costs,” Neuendorf says. If you can’t afford a prescription, ask your doctor for an alternative, or ask him or her to help you prioritize your medications, so you know which ones you can skip and which ones are nonnegotiable.

Don’t go it alone
Bringing a loved one or family member to your medical visits can help ensure that the doctor listens to you and answers your questions. Your loved one can take notes, remind you about issues you wanted to discuss and help you remember doctors’ instructions after the visit is over.

Don’t be afraid to make a switch
If your doctor rushes through visits, doesn’t address your questions or fails to listen to you without interrupting, look for a new physician. “There’s no shame in finding someone who’s a better fit,” Grube says.


Schenectady County: support group

Schenectady County:
 Barby (Schenecady County) has stepped down as leader. She did a wonderful job but it is just to much for her at this time. There is no leader to replace her at this time.

Anyone who wishes to volunteer to re-start this group, please email eson dot jud at gmail dot com


FDA reviews two new Parkinson’s drugs to treat ‘OFF’ episodes

22 October 2018 – For many people with Parkinson’s, “off” episodes — when disabling symptoms come back before it is time for the next dose of oral levodopa — are among the most troubling aspects of the disease. Now, two entirely new drug formulations with potential to alleviate “off” episodes may have reached the home stretch of their long journey to market. The FDA is expected to rule on an inhaled powder formulation of levodopa (with delivery similar to an asthma inhaler) and an under-the-tongue “Listerine strip” formulation of apomorphine in January 2019.

read more

FDA Reviews Two New Parkinson’s Drugs to Treat ‘Off’ Episodes


Another Drug for Parkinson’s Gets Approval

March 08, 2018 – Recently, the U.S. Food and Drug Administration (FDA) approved a new drug for Parkinson’s symptoms called Osmolex ER (amantadine extended-release). Osmolex ER is the third amantadine-based medication for Parkinson’s disease (PD), and joins Symmetrel (immediate-release amantadine) and Gocovri (extended-release amantadine). Amantadine works on two brain chemical systems involved in PD: dopamine and glutamate.

More options can be better, but they also can be confusing. Here we talk about these drugs’ similarities and differences and why you might consider one over another.

read more

https://www.michaeljfox.org/foundation/news-detail.php?another-drug-for-parkinson-gets-approval


January 10, 2019 meeting notice

Join the CDPSG Support Group for the monthly meeting.

January 1o, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

Susan C. Hare, MS, CCC-SLP from Albany ENT speaking about Speech – Swallowing – Voice –  Evaluations and Therapy

 


Albany Med recruiting for NILO-PD Study

A Phase II clinical trial to evaluate the safety and tolerability of nilotinib in Parkinson’s disease (PD) — NILO-PD — is under way at 25 sites across the United States. Researchers are looking to enroll 75 volunteers.

Nilotinib is a U.S. Food and Drug Administration (FDA)-approved treatment for cancer of the white blood cells. In a small Phase I trial, nilotinib showed potential benefit in PD. The nilotinib trial is one of many examples of repurposing, or repositioning, therapies for Parkinson’s. Repurposing is taking an existing medication approved by the FDA for one condition and using it to treat another; it can be a promising path to new PD therapies. But patients and clinicians are urged to wait for additional safety and efficacy data before adding nilotinib or any other repurposed drug to their regimen.

Here we answer a few key questions about the nilotinib trial.

What is the NILO-PD study?
The NILO-PD study will investigate the safety and tolerability of nilotinib in 75 people with Parkinson’s at 25 research institutions across the United States. Two-thirds of participants will receive nilotinib and the remaining will take placebo (an inactive pill) for comparison. Study involvement lasts approximately eight and a half months and includes 13 in-person visits.

What is nilotinib? Why do researchers believe it may slow or stop Parkinson’s?
Nilotinib is an FDA-approved drug to treat certain forms of white blood cell cancer. It is not approved to treat Parkinson’s disease. Nilotinib inhibits the activity of a protein, c-Abl, which is linked to pathways associated with PD, and preliminary data from a small Phase I clinical trial showed potential safety, tolerability and benefit in Parkinson’s. Watch a webinar on nilotinib.

Who is eligible to participate in NILO-PD?
Volunteers must meet certain criteria, including:

  • Age between 40 and 79,
  • PD diagnosis for more than five years, and
  • Stable PD medications, which include levodopa, for at least 30 days prior to enrollment.

Additional characteristics may qualify or exclude a participant as well. You can view all eligibility criteria on Fox Trial Finder.

How can people learn more about NILO-PD?
Visit Fox Trial Finder to read more about the study, eligibility criteria and recruiting sites. Or, contact your local site directly. (You can find phone numbers and emails on Fox Trial Finder.) You also can learn more on the study’s website: www.nilopd.org.

For more information, read the NILO-PD press release.

Site address:

Albany Medical College
47 New Scotland Avenue
Albany, NY  12208

If you are interested in participating or want to learn more about this study, please contact:
Sharon Evans, LPN 518-262-6682

 


Suggestions for Handwriting Changes

Many people with Parkinson’s disease notice changes in their handwriting. Handwriting often becomes small and cramped, and can become more difficult to control when writing for longer periods of time. This handwriting change is called micrographia.

Why does micrographia occur?
Parkinson’s can cause slowing of movement and feelings of muscle stiffness in the hands and fingers. Loss of automatic motion also affects the easy, flowing motion of handwriting. This can impact even simple writing tasks such as signing your name or writing a shopping list. Attempts to write quickly without thinking about forming each
letter contributes to small, cramped handwriting, and may cause the hand to develop a feeling of tightness.

How can I make writing easier?

read more https://parkinson.org/sites/default/files/Suggestions%20for%20Handwriting%20Changes.pdf


November 3, 2018 – Don’t Fall Stand Tall: Balance/Fall Risk Assessment

09:00 AM – 12:00 PM — …

Date: November 3, 2018
Time: 9:00 a.m. – 12:00 p.m.
Location: Regional Therapy Center, 225 Washington Street, Saratoga Springs
Fee: Free. Space is limited.

Join us for a FREE balance/fall risk assessment using standardized testing and the most current research. You will be screened by skilled, licensed physical and occupational therapists from the Regional Therapy Center, who will also offer tips to help prevent falls.

Each screening will take approximately 30 minutes. Please wear comfortable clothing and sneakers.

Registration is required. Please call Saratoga Hospital Healthsource at 518-580-2450 or


February 14, 2019  meeting notice

Join the CDPSG Support Group for the monthly meeting.

February 14, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

Tom Ford – Massage therapy


Speech and Swallowing Resources

http://parkinsons.stanford.edu/speech_swallowing.html for more current list

Relevant Publications – Downloadable

“Eating, Swallowing and Saliva Control in Parkinson’s”
Published by Parkinson’s UK, 2013
This six-page information sheet explains difficulties associated with eating and swallowing, as well as producing too much or too little saliva. Information and tips for family and friends are shared.

 

“Parkinson’s Disease: Speech and Swallowing,” by Marjorie L. Johnson MA/CCC-SLP
Published by National Parkinson Foundation (Now the Parkinson’s Foundation)
This 21-page booklet describes speech, swallowing, memory and thinking changes in PD. An evaluation check list helps determine if professional assistance is needed for speech and swallowing. Speech, swallowing, and cognitive self-help suggestions for patient, family and friends are included.
En Espanol: Enfermedad de Parkinson: Dificultades con el Habla y la Deglucion (tragar)

 

“Speaking Effectively, A Strategic Guide For Speaking and Swallowing”
Published by American Parkinson Disease Association, 2010
Booklet includes self-evaluations and caregiver surveys to determine at what point professional help is needed. Professional examinations are described along with recommendations for both home and professional intervention to improve speech, make eating easier and safer, and reduce drooling. Maintaining communication to reduce isolation is encouraged.


“Speech and Language Therapy and Parkinson’s”

Published by Parkinson’s UK, 2013
Short information sheet looks at what difficulties associated with speech and communication, and how speech and language therapy can help.

 

“Swallowing and Parkinson’s Disease”
Published by Parkinson’s Australia, 2008
Short summary of implications of swallowing problems, using both medical and lay terminology, with management strategies for some.

 

“What is Dysphagia?”
Published by American Parkinson Disease Association, 2011
This educational supplement describes the normal swallowing process. It offers seven swallowing exercises and a list of five other considerations that help with swallowing.

 


Relevant Online Information

“10 Tips for Managing Drooling in Parkinson’s,” by Dr. Maria De Leon
Published by defeatparkinsons.com, July 31, 2014
Sailorrhea, or drooling, refers to pooling of saliva in the mouth.  It occurs in around 50-80% of all Parkinson’s patients, particularly men.  This blog post explains the cause, risk of aspiration, anxiety, and social embarrassment, with 10 helpful tips & treatment options to help with this pesky problem.

 

“Speech and Swallowing Problems”
Published by National Parkinson Foundation (Now the Parkinson’s Foundation)
Webpage with self-assessments to determine if professional evaluation is needed for speech or voice and swallowing problems. Additioinal links to information on treatment for speech problems and a stronger voice.

 

“Saliva Control”
Published by the MSA Trust, April 2016
This 4-page fact sheet is aimed at those experiencing difficulties with saliva control.  It provides information about the possible problems and advises on what can be done to manage these symptoms.  MSA is a form of parkinsonism, sometimes referred to as ‘Parkinson’s Plus.’  It shares many gait, balance, and non-motor symptoms, like sailorrhea (drooling).

 

“Swallowing”
Published by What-When-How, In Depth Tutorials and Information
This short webpage explains the typical sequence of movements that transport food and liquids from the mouth to the stomach.  PD often affects the function of these muscles,  causing swallowing problems or drooling.  Significant swallowing problems can be life threatening.  Speech-language pathology can help a person improve control of these muscles.

 


Relevant Online Lectures and Webinars

“How Does Speech Therapy Help in Parkinson’s Patients”
By National Parkinson Foundation (Now the Parkinson’s Foundation), August 2009
Four-minute video features Michael S. Okun, MD.

 


“My Parkinson’s Story: Speech and Swallowing”
By the Veteran’s Administration
This 8-minute video alternates between an interview with a man and his wife and healthcare professionals. The man and his wife share how Parkinson’s has affected his speech and swallowing. The healthcare professionals explain how Parkinson’s affects speech and swallowing. Speech therapy can improve speech volume and enunciation as well as swallowing control and drooling. They also advise specific changes to eating habits and avoiding some types of foods to prevent choking.

 

“What Types of Tests and Techniques are there for Swallowing Problems?”
By the National Parkinson Foundation (Now the Parkinson’s Foundation)
Four-minute video features Michael S. Okun, MD.

 


Links last updated by Denise Dagan January 2018. This list compiled by Denise Dagan with Stanford’s Parkinson’s Community Outreach Program, May 2012.

 

 


Long sleeve t-shirt for sale

$20 per shirt with 100% of the proceeds going to support local PD activities!!!

To reserve one, come to a support group meeting or contact patrick klee pklee2210@yahoo.com

Styles:
long sleeve, navy shirt,
maroon short sleeve limited edition.  This unit will be Gildan 100% cotton or a 50-50 blend depending on availability (same brand as the dance t shirt and boxing shirts).

 


Molecule capable of halting and reverting neurodegeneration caused by Parkinson’s disease identified

The small SynuClean-D molecule interrupts the formation of the alpha-synuclein amyloid fibres responsible for the onset of Parkinson’s disease, and reverts the neurodegeneration caused by the disease. The study, headed by Universitat Autònoma de Barcelona researchers, was published in PNAS.

Read more

https://medicalxpress.com/news/2018-09-molecule-capable-halting-reverting-neurodegeneration.html


A New Parkinson’s Vocabulary – Humor

From: https://nwpf.org/stay-informed/blog/needed-new-parkinsons-vocabulary/

Needed: New Parkinson’s Vocabulary

Friday February 26, 2016

One of the less noticed challenges of Parkinson’s Disease is mastering the arcane vocabulary that describes the particulars of the disorder. If we want to speak clearly with our doctors and others about what ails us, we have to use strange words like “dyskinesia,” “festination,” “dystonia,” and “bradyphrenia.” Words that are fun to say on their own, but even more fun to rattle off as part of a sentence. “In spite of severe dystonia, she managed to festinate across the room.”

I like showing off my vocabulary as, much as the next person, (ok- I like it even more than the next person) but why do the doctors get to have all the fun making up the words? Plus, there are many word-worthy phenomena related to PD that they have overlooked! Who controls language controls how we think about about whatever it is we are talking about. Time for a little patient empowerment.

With that in mind, I offer some new PD words for us to consider adding to the current store.

“Pinballing” this one was coined by my wife to describe the tendency I and other people with PD have to walk erratically, knocking into shelves, signposts, and one another as we lurch through life.

“Bladderdash” adapted from the free-wheeling speech of Alaska Rep. Don Young,  describes the desperate process of finding a bathroom, frantically fumbling to unbutton and unzip your pants, and whipping down your underwear in time (you hope) to empty your urgent bladder.

“Murmur” of PD patients. A collective noun for a bunch of people with PD.

“Parkanoia” the feeling that people are covertly observing your PD symptoms. And judging you for them.

“No Parking Area” A place or circumstance where you feel uncomfortable exhibiting Parkinson’s symptoms, like in a restaurant, on a plane, in a park, at school, in church, at the grocery store, in a barber shop, on the subway, at a movie, attending a concert, at work, in the gym, at the library, buying shoes, on a date, at the pool, in court, at the ball game, in a bar, at a museum, with your neurologist, etc… etc… etc…

“Depillitated” Caught without access to your pills when you need them.

“Repillitated” To have access to your pills restored.

“Ghost Dose” Skipping a pill by accident, then grinding to a halt.

“Parkinstoned” To appear to be drunk or high due to PD symptoms such as lurching, falling, and slurred speech.

“Dopameanie” A perfectly nice person with Parkinson’s Disease who is mistaken for an anti-social jerk because they don’t smile due to facial muscle freezing.

“Parkinspotting” The habit of mentally diagnosing random strangers who lack arm-swing, have soft, hoarse voices, and/or walk slowly, but are clueless about the tell-tale symptoms of PD they are exhibiting.

Think how much easier these new words will make life. When someone asks what you did today you can say “I went to the mall to do a little Parkinspotting, and suddenly realized I had ghost-dosed my last pill. Wouldn’t you know, I was depillitated, I’d left them on the nightstand at home. Naturally parkanoia kicked in, and on top of that, I had to bladderdash to the restroom. Of course, by then I was totally parkinstoned and pin-balling all over the place. Security eventually threw me out, but I’ve been repillitated, and I’m fine now., except for a few bruises.”

See how easy and fun that is? If you have any custom-made PD words you think others would find helpful, don’t be stingy, please share them via the comments field below!

Peter Dunlap-ShohlPeter Dunlap-Shohl
NWPF Blogger


11 Books That Shine a Light on Parkinson’s Disease

Parkinson’s disease directly affects as many as one million Americans, according to the Parkinson’s Disease Foundation. When you consider their families, friends, and colleagues, the number of people truly touched by this disease is remarkable.

Whether you’re facing a Parkinson’s diagnosis or supporting someone living with the disease, education and community are key. Understanding the disease and what people living with Parkinson’s go through is a crucial first step in lending useful support. The following list of books is a perfect resource for those directly affected by the disease or even just those curious about it.

https://www.healthline.com/health/parkinsons-disease/best-books#1


December 8, 2018 – Holiday get together

Please join the Capital District Parkinson’s Support Group for our
Annual  Holiday Get Together

Saturday December 8, 2018 1 – 4 PM

Terrace room at Beverwyck Senior Center (directions

We will have holiday appetizers, hot and cold beverages and desserts as well as fun activities, gift exchange and music.

If you would like to take part in the gift exchange, please bring a gift valued around $10 or less.

Cost: $15 for singles and $25 for couples.

Payment to be made by cash or check on the day of the party. This would also be a good time to pay annual dues. Annual dues, $20/person or family.

If paying by check, make payable to “CD Parkinson’s Support Group”

Questions? Contact Ian Wing: iwing5082@hotmail.com or phone 518 794 0237


FREE Parkinson’s print materials available

There are a ton of great, FREE Parkinson’s print materials available – you just have to know where to look!  This is by no means a complete list however these items are particularly useful.

Davis Phinney Foundation Every Victory Counts book 

Parkinson’s Foundation “Aware in Care” kit, Caring and Coping guide, other handbooks

  • Visit www.parkinson.org
  • Click the “Ways to Give” tab at the top of the page
  • Click “Shop” (everything is free)
  • Select the item(s) you want to receive
    • For booklets, you have the option of downloading as a PDF
  • Click Add to Cart
  • When you’re done shopping, click “Checkout”
  • Fill in the required information.  If you do not want to receive emails from the PF, make sure to uncheck that box.
  • Need assistance or don’t have internet access?  Call 800-473-4636 to order.

APDA Materials

  • Visit https://www.apdaparkinson.org/resources-support/download-publications/
  • To download DIGITAL versions, select the booklet(s) or supplement(s) that you want to download.
  • To order PRINT copies, click the link near the top of the page that says, “You can also order print publications directly from us using this form.”
    • Fill in the required information.
    • Once you do that, available publications will be displayed.

 online education, I would suggest the sources below.  Please note that the webinars are archived on these sites so you do not have to view the webinar during it’s “live” broadcast.


William Kneissl 1936 – 2018

William Lee Kneissl, 82, died at home on Wednesday, August 22, 2018, after having a full and love filled life. Born to William S. and Alice T. (Coghlan) Kneissl, he grew up in northern New Jersey. His career in the banking business started while in college and lasted 42 years. He moved to Albany in 1966, and retired in 1998 as the senior vice president and treasurer of the Troy Savings Bank. He was active in Rotary for 41 years; and a member of many professional organizations over his business career. Bill enjoyed teaching accounting for the AIB and his work with Concerns U and Catholic Charities, which was most rewarding. Overseeing the complete restoration of the Troy Savings Bank Music Hall ranked high on his list; as well as the many wonderful people he met while living in Port Charlotte, Fla. and being a member of St. Max’s Church family. Bill is survived by his wife and soulmate, Julia (Cole) Kneissl, who brought happiness into his life; as did his children, Eileen (Douglas)  Elizabeth (Katerina) Kneissl and Eric (Michelle) Kneissl. He is also survived by Adrienne (Simon) Rudolph, James Hancock and Deirdre (Raymond) Rudolph; and his grandchildren, Heidi, Tristan, Julia, Brandon, Clare, Sophia and Ronan. A funeral Mass will be celebrated on Monday, August 27, at 10 a.m. in St. Vincent de Paul Church, 900 Madison Ave., Albany with burial in St. Agnes Cemetery, Menands. In lieu of flowers, the most appreciated remembrance would be a donation to St. Vincent de Paul’s Church Food Pantry, 900 Madison Ave., Albany, NY, 12208 or to your local food pantry. 

Daniel Keenan Funeral Home, Inc.

Published in Albany Times Union from Aug. 25 to Aug. 26, 2018


Spikes Trikes 10% off all purchases

Spikes Trikes is offering 10% off all purchases for anyone with Parkinson’s until September 30, 2018. Feel free to contact him on (518) 842-4827. His website is www.spikestrikes.biz. My husband (Bill) and I (Marie Thorne softballmom300@yahoo.com (518) 810-8483) both have trikes and are more than happy to meet up with anyone who would like to try one. Bernie (owner of Spikes Trikes) is also happy to have you try the ones in his shop to see what would best work for you. I am excited to tell you that they are fun to ride and a great way to exercise. You can get auto assist on the trikes which you can ride without the assist, with just some assist and with full assist.
Spike’s Trikes | Where The Fun Begins

www.spikestrikes.biz
Welcome to Spikes Trikes, a Premiere Terra Trike Dealer, where customer service and satisfaction is our top priority.We have been selling and servicing recumbent trikes in the capitol region of New York since 2013. Stop in and see us today.


Hope Soars Gala 2018 – cancelled

The Hope Soars Gala will not be held this year.
Hope Soars underwrites many of the PD programs in the Capital District so that they are able to be offered at no or low cost.  Hope Soars also contributes to Parkinson’s Disease Research at Albany Medical Center’s Movement Disorders Center.
The gala funds a large part of this. Since it is not being held this year  this will probably stretch the organization’s resources a bit thinner than other years. While they would always welcome donations at any time, please keep Hope Soars  in mind especially this year if you should find a little extra in your wallet or pocketbook. The organization isn’t asking for this, but we know that it would be welcome, and it supports all of us, so please keep it in mind.
And, if you haven’t checked out any of the great PD programs they support, Please Do!  You can find all of them on www.hopesoars.org.  Try out PD yoga, boxing, dance, peddling4parkinsons, special events like the walk….it’s all there.
Thanks!
Cindy Petker

Wisdom and advice for the newly diagnosed

Other pieces  of advice and wisdom:

  • Take your meds on time.
  • Cry when you need to.
  • Everyone’s journey is different.
  • Exercise.
  • It’s OK to ask for help!
  • Give yourself time to get your head around the diagnosis. Allow yourself time to grieve.
  • Don’t overthink having PD. Don’t dwell on it.
  • Keep a sense of humor. If you’ve never had one, it’s time to get one.
  • Try to stay away from stress. Stress makes PD symptoms worse. Eliminate what you can out of your life.
  • The more you stress, the worse the symptoms are.
  • Discipline yourself. Get what information you can on PD and then make a plan. Establish a routine on taking your meds on time. Keep a log/journal to take to your appointments.
  • Pray.
  • Exercise.
  • Stay away from Dr. Google.
  • Exercise your brain as well as your body. Word games. Number games. Play games with your grandchildren or your kids or friends.
  • Don’t let this be a death sentence.
  • Never, never, never, never, never give up.

And exercise.


Newly diagnosed advice from M.J. Fox Foundation

uest blogger Bev Ribaudo was diagnosed with Young Onset Parkinson’s at age 47, but her symptoms began in her late 30′s. Having always been an optimist, Bev decided to fight this disease using humor, sharing her observations at Parkinson’s Humor.

First, don’t panic. Go ahead and get mad, throw a fit, cry for a while, then get over it and get on with your life. It’s just Parkinson’s disease, it won’t kill you. It could be a lot worse, you could have cancer.

Read more

https://www.michaeljfox.org/foundation/news-detail.php?you-have-just-been-diagnosed-with-parkinson-now-what


Newly diagnosed advice from Davis Phinney Foundation

Hearing the words, “You have Parkinson’s disease,” is life changing. For some, a Parkinson’s diagnosis may mark the end of a long and frustrating search to explain a collection of different and seemingly disconnected symptoms. For others, a Parkinson’s diagnosis is a complete shock, filled with feelings of disbelief and despair. For everyone, a Parkinson’s diagnosis brings a new and unexpected journey.

Parkinson’s is not life-threatening, but it is progressive. This means that symptoms and effects of Parkinson’s will change and get worse over time. Parkinson’s is also very complex and can affect almost every part of the body, ranging from how you move to how you feel to how you think and process. When you are first diagnosed, the sheer amount of information and the uniqueness of each person’s experience of Parkinson’s can be incredibly overwhelming.

In this section, we help you navigate to the right information so you can get started on your path to living well with Parkinson’s.

Newly Diagnosed

 


Newly diagnosed advice from Parkinson.org

If you have been recently diagnosed with Parkinson’s disease, you are not alone. Today many people with Parkinson’s are looking beyond their doctors alone to keep themselves well. We are here to help empower you by giving you the tools and information you need to lead a healthier, more independent life. Starting today you have the power to make a positive change in your life.

This section of Parkinson.org is unique; all of topics listed below have been written by people who have lived well with Parkinson’s for several years

http://www.parkinson.org/Living-with-Parkinsons/Managing-Parkinsons/Advice-for-the-Newly-Diagnosed

 


Speach and swallowing in PD

This booklet explains changes in speech, voice and swallowing that can affect people with Parkinson’s disease. Exercises for speech and voice along with advice for improved swallowing are included, along with advice on speech-language therapy and medications.

http://parkinson.org/pd-library/books/speech-swallowing

 

Changes in speaking, chewing and swallowing are common in Parkinson’s disease (PD) and can interfere with important parts of life, such as the ability to eat well. But they don’t always have obvious signs, and many people with PD are not aware of these difficulties, or don’t know how to describe them.


The Albany Guardian Society 2018 Fall 2018 Institute semester

The Albany Guardian Society 2018 Fall Institute semester offers programs in the following broad categories:

Read more at http://www.albanyguardiansociety.org/fall18catalog.php

  • Caregiving
  • Community Engagement
  • Health + Wellness
  • Housing
  • Legal
  • Professional Development
  • Technology

These categories offer a variety of selections on topics of importance to a wide audience. Please scroll down to see all of the Institute’s offerings for the Fall 2018 semester.

There is no cost to attend our programs; however, registration is required for each course you wish to attend. To register, simply press the “Register Button” next to the class description and complete the registration form. If you are unable to complete an online registration, please contact Albany Guardian Society and we will provide assistance.

If you have any questions regarding the Institute or are unable to attend a class once you have registered, please call Albany Guardian Society at 518-434-2140 or email us at ags@albanyguardiansociety.org.

 


October 11, 2018 Onondaga County Office for Aging – Living an Active Life with Parkinson’s Disease Conference

Conference Date – Thursday, October 11, 2018

Please join us for the Sixth Annual Onondaga County “Living an Active Life with Parkinson’s Disease” Conference. This free day of learning is offered by the Onondaga County Office for Aging and Upstate University Hospital’s HealthLink and it will be held at the Holiday Inn, 441 Electronics Parkway, Liverpool, NY 13088.

Check-in is from 8:15 am to 8:45 am and the program runs from 9:00 am to 2:15 pm and includes lunch.

The conference host, Susan Kennedy, will introduce the following speakers:

Sarah King, PT, DPT

– Redefining Your Diagnosis
– How to Build Your Parkinson’s Plan of Attack
– Exercise is Medicine – Movement Workshop
Michelle Burack, MD
Gut-Brain Connections in Parkinson’s
Fahed Saada, MD, Neurologist
Psychological Issues with Parkinson’s Disease

There is no cost for the conference and lunch but registration is required as space is limited. To register, please call Upstate Connect at 315-464-8668.

The deadline for registration is Friday, October 5, 2018.

Please feel free to print, post and distribute the attached flyer.

Thank you.

Ellen M. McCauley
Public Information Specialist

Onondaga County
Department of Adult & Long Term Care Services

(Aging, Mental Health, NY Connects, Protective Services, Veterans)
421 Montgomery Street, 10th Floor

Syracuse, NY 13202

Phone: (315) 435-2362 Ext. 4942; Fax: (315) 435-3129

Email: EllenMcCauley@ongov.net

Website: www.ongov.net; Department www.ongov.net/adult


Directions to Van Cortland Room at Beverwyck

40 Autumn Drive, Slingerlands, NY  12159

WE WILL MEET IN A DIFFERENT BUILDING AND DIFFERENT ROOM, THIS MEETING ONLY.

We will meet at the Van Cortland Room at Beverwyck Slingerlands. GPS – 40 Autumn Drive, Slingerlands, NY 12159 Short version – go past the driveway you usually turn in to our normal meeting room. Turn left at the first intersection at Autumn Drive Park at the “Main Entrance” on the left. Enter through the Main Entrance. Look for the Van Cortland Room, close to the entrance Map
 

From the West: 

(Schenectady, Scotia, Glenville, Buffalo) Route 5 East, right on Route 155, left on Western Avenue (Route 20), right on Schoolhouse Road, left on Krumkill Road (1/2 mile), right onto Beverwyck Lane. Turn right at the second drivway on the right. Park and come in and join us. Or, Route 7 East, to Route 87 South to end, left on Western Avenue (Route 20), right on Schoolhouse Road, left on Krumkill Road (1/2 mile), right onto Beverwyck Lane. Turn LEFT on Autumn Drive and look for the parking lot at the Main Entrance. If the main entrance parking is full, drop off passengers and park in the nearby North or South lots.  

From the East:

(Troy, Rensselaer, East Greenbush, Boston) Interstate 90 West to Slingerlands Exit 4 (Route 85W), to Krumkill Road Exit. At end of exit ramp, take a right on Krumkill Road (1 mile), left onto Beverwyck Lane.Turn right at the second driveway on the right. Park and come in. Or, Route 9 South to Interstate 90 West, to Slingerlands Exit 4 (Route 85W), to Krumkill Road Exit, right on Krumkill Road (1 mile), left onto Beverwyck Lane. Turn LEFT on Autumn Drive and look for the parking lot at the Main Entrance. If the main entrance parking is full, drop off passengers and park in the nearby North or South lots.    

From the South:

(Ravena, Coeymans, Catskill, NYC) NYS Thruway North to Exit 24, to Route 87 South (exit 1-S Western Avenue), left on Western Avenue (Route 20), right on Schoolhouse Road, left on Krumkill Road (1/2 mile), right onto Beverwyck Lane. Turn LEFT on Autumn Drive and look for the parking lot at the Main Entrance. If the main entrance parking is full, drop off passengers and park in the nearby North or South lots.  

From the North:

(Clifton Park, Saratoga Springs, Adirondacks) I-87 (Northway) South to Route 87 South (exit 1-S Western Avenue), left on Western Avenue (Route 20), right on Schoolhouse Road, at the traffic circle take the second exit onto Krumkill Rd., then a right onto Beverwyck Lane. Turn LEFT on Autumn Drive and look for the parking lot at the Main Entrance. If the main entrance parking is full, drop off passengers and park in the nearby North or South lots.  

New hope for Parkinson’s Cure

Japanese research team announced it will start human clinical trials for a new Parkinson’s disease treatment.
On Monday, a team from Kyoto University’s Center for iPS Cell Research and Application announced it will begin testing the new treatment on humans after successful rounds of animal trials. The injected treatment uses stem cells to help those with Parkinson’s diseases and received approval from the government.

Read more