Posts


Fox Insight

The future of Parkinson’s research is in powerful hands. Yours.

Fox Insight is an online clinical study where people with Parkinson’s disease and their loved ones share information that could transform the search for better treatments. You can help shape the future of Parkinson’s research — but it’s going to take all of us, working together. You in?

https://foxinsight.michaeljfox.org/

 


Be prepared for a hospital visit

No one wants to go to the hospital, but sometimes it is necessary.

Here are some ways to be prepared

Aware in care kit
To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.

Aware in Care kits can be requested from your local Parkinson’s Foundation Chapter or Center of Excellence. If you do not live in an area with a Chapter or center, you can order a kit online.

http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/Patient-Safety-Kit

Vial of life

Everybody should have a Vial of Life form filled out. The Vial of Life is a smart way to have your medical information on hand just in case of an emergency. Seniors need this because of their constant medical changes and medications… It’s the right thing to do.

Put one in your wallet, in your glove compartment, and especially on your refrigerator door

Print a kit http://www.vialoflife.com/print-free-vial-kits/

Print a decal to put on your door and refrigerator http://www.vialoflife.com/print-free-vial-kits/


Dance Through Parkinson’s Testimonials

​​The​re are ​many reasons that I enjoy participating in the Dancing ​Through Parkinson’s program. ​Here is my list:

​The brain can be changed by doing new activities. Dancing requires concentration and coordination, which help​s my brain​ stay sharp​. My neurologist is very pleased with my stable condition and says to keep up the exercise, including D​TP. T​his is just as important as ​​my medications, in ​her opinion.

I enjoy meeting the other ​people with Parkinson’s. D​TP provides a support group atmosphere, even though that was not the original intention of the program.

Rachelle ​brings a sense of joy to the class by playing interesting music and making the class fun and exciting . Th​e class always ​leaves me feeling uplifted.

Jud Eson – Dance Participant


Dance for Parkinson’s was something I didn’t have much interest in, especially since I couldn’t dance before I was diagnosed with Parkinson’s Disease (PD) 11 years ago.  Through the cajoling of friends, I hesitantly went perhaps a month after the classes had started.  I was amazed by the positive energy that the instructor exuded and the physical/emotional benefit was measurable.  The class benefits  those who have extreme limitations and to those who have been recently diagnosed.  Since Rachelle’s most recent training in NYC with the Mark Morris Dance Group, the class has seen a higher focus on fine motor skills, gait training, coordination, and balance exercises, which translates into real life benefits of dressing one’s self without help, walking, typing, thinking, and the general well being of individuals who have been inflicted by PD. Beyond the physical benefits, I spoken to a number of people in the class whereby Dance for PD is their only social outlet for the week.
While the class is being partially subsidized by the local PD support group, the weekly cost of $5 may seem at first glance as “affordable”, one must remember that generally speaking, PD patients are older and typically on a fixed income.  In my case, the impact of PD has forced me to stop working, and I too am now on a fixed income. It would be my hope that the making the Dance for PD class free would allow class size to grow with many of these PD dancers being able to experience the benefits of the Ciccotti Center.   Making the PD Dance class free would make it available to more PD patients.
While medical breakthroughs have been limited, exercise in any format has shown to slow down the progression of PD by as much as 30%.

Patrick Klee – Dance Participant


I would like to thank the Ciccotti Center for hosting this class! It is one of the activities I truly look forward to attending on a regular basis.
I was diagnosed with Parkinson’s Disease (PD) almost 20 years ago. For me, the best thing is exercise… all different forms of exercise and movement. The variety for me is important.
Besides taking the Dance/Movement class I also take a (non-contact) boxing class and a spin class (stationary bike). The dance class to me is like a PD Support Group. We get together, chat, take the class, and then chat more. This is one of the few places I feel comfortable to make mistakes and not over think about my symptoms. We are a group of like individuals taking the class with
limited opportunities to have the camaraderie of others in public. This class gives that to us. The smiles, laughter, and joy that emit from the room can be amazing. I appreciate this opportunity to let you know how grateful I am of the Cicotti Center’s support.

Bruce Plotsky – Dance Participant


Channeling Dance to Keep Moving with Parkinson’s

“Seven years ago, I was diagnosed with Parkinson’s disease, for which there is still no cure. I had but two options, I could live in fear, or I could scare myself healthy. I scared myself healthy, and so can you.”

Exercise is an important part of healthy living for everyone. For people with Parkinson’s disease (PD), exercise is more than healthy — it is a vital component to maintaining balance, mobility and activities of daily living. Exercise and physical activity can improve many PD symptoms. These benefits are supported by research.

Read more


According to a study published in Frontiers in Human Neuroscience Journal, dancing, especially when followed by a change in choreography, is superior to repetitive physical activities such as walking or cycling.

People who are physically active can slow down their brain’s aging process. Neuroscientists behind this study say that dancing is the most effective physical activity.

In their study, they prove that 2 different types of physical activity, dancing and endurance training  both increase the brain’s area that declines over time as we age. But, only dancing has proved to be effective when it comes to changes in behavior due to the noticeable improvements in balance.
The researchers selected 52 elderly volunteers aged 63-80 years for the purpose of the study. Then, they divided them randomly into two groups, one group was assigned to join dance classes, and the other group joined the sports control group.
The dance group took dance lessons with a constant change of choreography which moves they were asked to memorize. The program for the sports group, on the other hand, consisted of strength training, endurance training, and flexibility training.
The hippocampus area of the brain which is the most susceptible to decline because of the aging processes has increased in both groups. This area of the brain is also responsible for memory, balance, as well as learning.
But, only volunteers in the dance group had an increased volume of other subparts in the left hippocampus. Moreover, only dancing had increased the volume of one part in the right hippocampus called the subiculum.
This study proved that dancing, especially when followed by a change in choreography, is indeed superior to repetitive physical activities such as walking or cycling.


More than 35 peer reviewed scientific research studies conducted at a number of major university research centers around the world including Roehampton University, University of Florida, Queensland University of Technology, York University and the University of Freiburg point to the benefits of dance for people with Parkinson’s. A number of leading neurologists and movement disorder specialists around the world include Dance for PD classes among a shortlist of recommended activities for their patients.


Do you have a testimonial to add?

[ninja_form id=5]


Thaddeus F. “Ted” Burek – 1934 – 2019 | Obituary

Burek, Thaddeus “Ted” F. RENSSELAER Thaddeus “Ted” F. Burek, 85, passed away peacefully on Thursday, June 13, 2019, at the Hospice Inn at St. Peter’s Hospital in Albany, with his wife by his side. Born at home in East Greenbush on June 7, 1934, Ted was the son of the late Joseph W. and Frances A. (Byer) Burek. He is survived by his cherished wife of 63 years, Carol A. (Pitcher) Burek whom he met at Columbia High School. Ted was a star basketball player, scoring 27 points in one game to lead Columbia to their first Central Hudson Valley League Championship. Carol was a cheerleader who never stopped cheering for “Mighty Might” and she was devoted to him to the very end. After a stint in the U.S. Marines, Ted married Carol on September 10, 1955, in St. John’s Church in Albany. Ted was the owner of Century Monument Company in Rensselaer, and Grace Memorials in Colonie. He worked for many years at St. John’s Church in Rensselaer as superintendent for the school and Holy Sepulchre Cemetery in East Greenbush. Ted was a generous man to family and friends, as well as strangers in need, doing so because “that is what you do, help others.” He loved his family and friends immensely and will be greatly missed. Ted is survived by his five loving children and their spouses, Mark (Ann) Burek, David (Karen) Burek, Nancy (Kenneth) Troxell, Timothy (Tina) Burek and Mary (John) Bartis. He also leaves behind his 14 grandchildren, Joseph, Nicholas, Christian, Sean, Andrew, Rachael, Troy, Nathaniel, Zachary, Jackson, Steven, Lauren, Timothy, and Almy; and one great-grandchild, Vincent. Ted is also survived by his siblings, Mary LaPoint, Helen (Stephen) Krill and Paul (Maureen) Burek, as well as many nieces and nephews. He was predeceased by his siblings, Agnes, Joseph, John, Stanley, Frances, Margaret, Carolyn and Dorothy. Calling hours will be held from 3 to 8 p.m. on Tuesday, June 18, in St. Pius X Church, 23 Crumitie Road, Loudonville. A Mass of Christian Burial will be celebrated at 11 a.m. on Wednesday, June 19, in St. Pius X Church. Burial will be in the Holy Sepulchre Cemetery following the Mass. In lieu of flowers, the family requests donations be made to The Community Hospice Foundation, 310 S. Manning Blvd., Albany, NY, 12208 or St. Jude Children’s Research Hospital, , P.O. Box 1000, Dept. 142, Memphis, TN, 38148-0142.


July 17, 2019, September 18 – Deep Brain Stimulation (DBS) Therapy Lunch & Learn Workshop at The Desmond.

There are 2 workshops left:  July 17 & Sept 18. To sign up for a workshop, call 518-262-0739. An answering machine will pick up the call and the recording will NOT mention Albany Med, PD, or workshops, but it’s the correct number. Leave a message about which workshop you want to attend and leave your number.

July 17, September 18
Deep Brain Stimulation Lunch and Learn
Desmond Hotel
660 Albany Shaker Road
Albany, NY 12211
(888) 448-1297
Contact: Ellie Hobson, RN, BSN – RN to Dr. Julie Pilitsis and Dr. Vishad Sukul (518) 262-0739 hobsone@mail.amc.edu
RSVP to (518) 262-0739 or email movement@amc.edu

The lunch is very nice (free), too!


November 14, 2019 – Meeting notice

Join the CDPSG Support Group for the monthly meeting.

November 14, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, care partners, medical professionals are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic : Darrin Bern, Amneal Pharmaceutical, Rytary drug rep


June 22, 2019 – Albany Med Parkinson’s Symposium at the Marriot

Albany Med Movement Disorder Center Presents

Date: Saturday, June 22

Albany Marriott, 189 Wolf Road, Albany, NY

To accommodate as many patients as possible, we ask that all reservations be limited to no more than 4 people.

Program:

9:00 am – Registration, Continental breakfast

9:30 am – Surgical Treatment update – Jennifer Durphy, MD

10:00 am – Q&A Session/Break

10:20 am – Inspirational speaker – Lory Smitka

10:50 am – Q&A Session/Break

11:10 am – Research update – Eric Molho, MD, Professor of Neurology & Riley Family Chair in Parkinson’s Disease

11:40 am – Update on community resources – Mark Burek from local community and support group.

12:10 am – Final Q&A Session

Reservations are required. To register, please call 518-264-4257 or email rindens@amc.edu by June 14.


APDA Symptom Tracker Smartphone App

Everyone experiences PD differently, and symptoms can vary greatly day by day.  The more specific you can be with your health care team about the types of symptoms you’re experiencing, the better your doctor(s) can tailor a treatment plan specifically for you.  But sometimes it can be hard for people to remember how certain symptoms have or have not affected them since the last time they connected with their health care team.  Noting this challenge, APDA has developed a new mobile phone app to make it easy to keep track of symptoms frequently and more accurately and share that information with the medical professionals who are providing care.

The free APDA Symptom Tracker App guides you through a simple set of questions that allow you to rate how certain motor and non-motor symptoms are affecting you.  It then creates a simple graph to indicate which symptoms are most impacting your quality of life; that graph can be saved in the “My Library” section of the app and can also be emailed directly to members of your health care team.  Over time, you can compare the results to see if certain symptoms are getting worse and determine which symptoms need to be addressed more urgently than others. 

The APDA Symptom Tracker also has a special “Questions for the Doctor” feature that generates a list of suggested follow-up items for you to review with your doctor.  This can help your be more proactive in managing your PD.  You can bring a printout of the questions to your appointment so you don’t forget to ask any that are important to you.  The app also features a useful list of resources that connects your directly to a wealth of quality, credible PD information.

The APDA Symptom Tracker App can help you have more meaningful conversations with you healthcare team and better manage your disease. The app can be downloaded for free from the Apple App Store or Google Play.

The development of this app was made possible by generous support from Acadia Pharmaceuticals.


September 12, 2019 Meeting notice

Join the CDPSG Support Group for the monthly meeting.

September 12, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Topic : TBD


Blood Pressure Drug, Isradipine, Shows No Benefit for Parkinson’s Disease

A large-scale study of the blood pressure drug isradipine found that the drug did not show any benefit for people with Parkinson’s disease.

“Unfortunately, the people who were taking isradipine did not have any difference in their Parkinson’s symptoms over the three years of the study compared to the people who took a placebo,” said lead investigator Tanya Simuni, MD, of Northwestern University.

Read more https://www.michaeljfox.org/foundation/news-detail.php?blood-pressure-drug-shows-no-benefit-for-parkinson-disease


Supplements Won’t Prevent Dementia. But These Steps Might.

From NY Times https://www.nytimes.com/2019/03/01/health/dementia-prevention-supplements.html

There are ways people can reduce their risk of dementia. Two prestigious panels, reviewing many prevention studies, recently came up with several recommendations.

The more conservative report, from the National Academies of Sciences, Engineering and Medicine in 2017, relied primarily on large randomized clinical trials.

There aren’t many of those, so the panel endorsed just three interventions “supported by encouraging but inconclusive evidence,” to prevent, delay or slow cognitive decline.

The three:

  • Increased physical activity;
  • Blood pressure management for people with hypertension, particularly in midlife;
  • And cognitive training.

That last recommendation doesn’t necessarily refer to commercial online brain games, said Dr. Kristine Yaffe, a neuropsychiatrist and epidemiologist at the University of California, San Francisco, who served on the panel.

“It’s really the concept of being mentally active,” she said. “Find something you enjoy where you’re learning something new, challenging and stimulating your brain.”

Though the evidence to date doesn’t establish which mental workouts have the greatest impact or how often people should engage in them, “they’re not expensive and they don’t cause side effects,” Dr. Yaffe pointed out.

The blood pressure recommendation got a boost in January with the latest findings from the Sprint trial, a multisite study stopped early in 2015 when intensive treatment of hypertension (a systolic blood pressure goal of less than 120, compared to the standard 140) was shown to reduce cardiovascular events and deaths.

The investigators continued the trial, however, with 9,361 participants who had hypertension (average age: 68) and completed follow-up cognitive assessments.

Their results, published in JAMA, showed the intensive treatment group less likely to develop dementia than those in standard treatment, though not by a statistically significant margin. Intensive treatment did, however, significantly reduce participants’ risk of mild cognitive impairment, a frequent precursor to dementia.

“To me, it was one of the most exciting findings to come along in years,” said Dr. Yaffe, who noted in an accompanying editorial that this was the first large trial to demonstrate an effective strategy for preventing age-related cognitive impairment.

“The same things we recommend for heart health turn out to be important for cognition,” she told me. “It’s a blossoming field.”

The Lancet Commission on Dementia Prevention, Intervention and Care also recommended hypertension treatment for the middle-aged, along with exercise, social engagement and smoking cessation, as well as management of obesity, diabetes, hearing loss and depression. Such steps could prevent or delay a third of dementia cases, the commission estimated.

When Dr. Yaffe gives talks on dementia prevention, she also mentions good sleep hygiene and urges listeners to protect themselves against brain injuries.

It’s important advice, but disappointingly undramatic. Where’s the magic bullet? Don’t we already know to stay physically and mentally active, maintain a normal weight, treat high blood pressure and so on?

Moreover, “it’s not foolproof,” Dr. Yaffe acknowledged. In the lottery of dementia, “there’s a role for genetics. There’s a role for bad luck.”

Still, she added, “The concept is important. You can do something about this. You can lower your risk.”

That’s why the most helpful approach Donna Kaye Hill uses to protect herself from dementia probably isn’t taking fish oil,


An active form of vitamin B12 can reduce the effects of dopamine loss in Parkinson’s disease caused by genetic mutations in the LRRK2 gene, a study suggests.

These finding means that this form of vitamin B12 could be used as the basis for developing new therapies for treating Parkinson’s.

The study, “Vitamin B12 modulates Parkinson’s disease LRRK2 kinase activity through allosteric regulation and confers neuroprotection,” was published in Cell Research.

Several studies have shown that overactivation of the LRRK2 enzyme, due to genetic mutations in the LRRK2 gene, is associated with the development of a hereditary form of Parkinson’s disease. But increasing evidence has suggested that this enzyme also may contribute to the progression of sporadic cases of Parkinson’s — ones caused by environmental factors.


Treatment with Intranasal Insulin May Improve Verbal Fluency and Motor Function, Early Study Shows

This pilot longitudinal study has shown that INI administration may improve functional motor skills in PD and may potentially preserve cognitive performance as compared to baseline and the placebo group. This proof-of-concept approach has shown that the use of INI in treatment of cognitive and motor impairment related to PD is safe and feasible without the risk of hypoglycemia. The lack of disease progression in the MSA case warrants further investigation. Our study provided preliminary data that suggested an improvement of functional skills after four weeks of daily INI treatment that paves the way toward a larger cohort study to evaluate long-term safety and potential efficacy of intranasal insulin administration for potential treatment and prevention of functional decline in patients with Parkinson disease.

Read more…. https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0214364


How Exercise Affects Our Memory

Even a single workout may make our brain’s memory centers, like our muscles, more fit. Read more at NY Times https://www.nytimes.com/2019/05/01/well/move/how-exercise-affects-our-memory.html

A single, moderate workout may immediately change how our brains function and how well we recognize common names and similar information, according to a promising new study of exercise, memory and aging. The study adds to growing evidence that exercise can have rapid effects on brain function and also that these effects could accumulate and lead to long-term improvements in how our brains operate and we remember.

Until recently, scientists thought that by adulthood, human brains were relatively fixed in their structure and function, especially compared to malleable tissues, like muscle, that continually grow and shrivel in direct response to how we live our lives. But multiple, newer experiments have shown that adult brains, in fact, can be quite plastic, rewiring and reshaping themselves in various ways, depending on our lifestyles.

Exercise, for instance, is known to affect our brains. In animal experiments, exercise increases the production of neurochemicals and the numbers of newborn neurons in mature brains and improves the animals’ thinking abilities. Similarly, in people, studies show that regular exercise over time increases the volume of the hippocampus, a key part of the brain’s memory networks. It also improves many aspects of people’s thinking.

But substantial questions remain about exercise and the brain, including the time course of any changes and whether they are short-term or, with continued training, become lasting.

Read more at NY Times https://www.nytimes.com/2019/05/01/well/move/how-exercise-affects-our-memory.html


Parkinson’s results beyond researchers’ wildest dreams

A treatment that has restored the movement of patients with chronic Parkinson’s disease has been developed by Canadian researchers.

Previously housebound patients are now able to walk more freely as a result of electrical stimulation to their spines.

A quarter of patients have difficulty walking as the disease wears on, often freezing on the spot and falling.

Parkinson’s UK hailed its potential impact on an aspect of the disease where there is currently no treatment.

Prof Mandar Jog, of Western University in London, Ontario, told BBC News the scale of benefit to patients of his new treatment was “beyond his wildest dreams”

Read more at https://www.bbc.com/news/health-47803496


October 10, 2019 – meeting

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands. .

Our speaker will be Dr. Eric Molho

Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients. He is also uniquely skilled and experienced in botulinium injections for dystonia, providing patients with optimum results. Patients value his comprehensive and compassionate approach: “The best that I can offer is my time and expertise,” explains Dr. Molho. “These are complex cases and I feel it’s important to take the time to distinguish each individual patient’s needs, tolerance for medication and lifestyle in order to ensure the best treatment outcomes.”
Dr. Molho is a graduate of Albany Medical College where he currently serves as a professor of neurology and the Riley Family Chair in Parkinson’s Disease. At Albany Medical Center, he completed his residency in neurology and a fellowship in movement disorders with Dr. Stewart Factor. He has served as the co-director of the Tardive Dyskinesia Clinic and Huntington’s Disease Comprehensive Care Center, as well as the course director of the 2nd year clinical neurosciences course at Albany Medical College. As an active member of the American Academy of Neurology and Movement Disorders Society, Parkinson Study Group, Huntington Study Group and Dystonia Study Group, Dr. Molho is undoubtedly a leader in his field uncovering medical breakthroughs and providing exceptional patient care.


CARE Act wallet card

The Caregiver Advise, Record, Enable (CARE) Act helps family caregivers as their loved ones go into the hospital and as they transition home.

The CARE Act requires hospitals to:

  • Record the name of the family caregiver on the medical record of your loved one.
  • Inform the family caregivers when their  loved one is to be discharged.
  • Provide the family caregiver with education and instruction of the medical tasks he or she will need to perform for the patient at home.

The CARE Act has passed in NY State,

click here to download a CARE Act wallet card to place in your and your loved one’s wallets—next to your insurance cards. That way, you’ll both have important information about this new law available when you need it most

If you are a family caregiver, you’re not alone.

To find the tools and resources you need, go to the AARP Caregiver Resource Center.


PD SELF – a learning program designed to help people with Parkinson’s better manage their disease

PD SELF program starting in September 2019.

Please give us your contact information, by filling in the interest form below, to reserve a place in the program starting September 2019.

PD SELF – Parkinson’s Self-Efficacy Learning Forum – A national program, now being offered in Albany for the second time, that provides people with Parkinson’s an in-depth understanding of the disease and the tools to manage it with confidence.  There is no cost to attend.  Registration is required.  Space is limited.

This self-efficacy learning forum is specifically designed for those who have been diagnosed with Parkinson’s disease (PD) within the past three years and their care partners. We will learn about the disease and how to approach goals, tasks and challenges.

Sessions will be held starting Wednesday September 18, 2019.  There will be a total of eight monthly sessions. Each session will be from 4:00 – 7:00 on the third Wednesday of the month.  We will meet at the Terrace Community Room at Beverwyck in Slingerlands. – 41 Beverwyck Lane, Slingerlands, NY 12159. (directions)

Debra Virtanen and Jud Eson traveled to Denver in May 2018 to attend a training course to learn how to facilitate the PD SELF program.  Facilitation teams, including a person with a clinical background and a person with PD, came from 11 locations across the country to learn.  Team Albany included Debra, a physical therapist, and Jud, a person with Parkinson’s.  This program is distinct and separate from the Capital District Parkinson’s Support Group.

Many people are handed a diagnosis with very little guidance on what to do next. But the diagnosis is life changing. Facing life with a chronic progressive disease means facing changes to health, relationships, family life, employment and finances.

Research tells us that when people are given the resources to cope with these changes, they are empowered to take an active role in managing PD, leading to better health and quality of life.

Participants are provided with a PD SELF Curriculum Field Guide containing the course content for each of the eight modules.

  1. Adapting to Parkinson’s Disease
  2. Acquiring Self-Efficacy
  3. Creating your personal health care network
  4. Understanding PD medications and treatments including complementary and alternative medicine
  5. Benefiting from exercise and neuro-plasticity
  6. Understanding cognition and non-motor symptoms
  7. Strengthening the relationship between people with Parkinson’s and Care Partner
  8. Going forward

Over the eight modules, participants learn how to master their own relationship to Parkinson’s. The skills and behaviors learned include:

  • Setting and achieving goals
  • Self-monitoring
  • Keeping health care records
  • Communicating with your doctor
  • Establishing new routines
  • Overcoming obstacles
  • Problem solving
  • Reflection and journaling
  • Managing negative emotions
  • Realistic optimism
  • Resilience and tenacity
  • Self-Advocacy

For more information and to register, please visit the PD SELF website at PDSELF.org or send an email to PDSELF.Albany@gmail.com .

If you are interested  in registering, fill out an interest form

Spread the word with this flyer


Didier Thomas – 1928- 2019 | Obituary


Didier Octave Thomas was born in Paris, France on September 7, 1928, the youngest of nine children, and died in Schenectady on February 10, 2019. He was the son of the late Octave and Gabrielle Thomas. He studied architecture at l’Ecole des Beaux Arts in Paris, where he met Susan Felstiner of Mount Vernon, N.Y. during her junior year abroad. They were married in Mount Vernon on April 26, 1953, and lived in various places over the years in New York, New Jersey and Massachusetts. After two years service in the U.S. Army, Didier worked in architectural design, urban planning and historic preservation, culminating in ten years as associate director of planning at Harvard University. After retirement, he led a community organization that converted Boston’s landmark 19th century water pumping station into the Waterworks Museum. He is survived by his wife Susan; daughter Katherine Rosenblatt (Michael) of Slingerlands; son Daniel Thomas (Susanne) of Leiden, The Netherlands; and four grandchildren, Rachel, Julien, Joshua and Zachary. A private burial was held on Tuesday, February 12, 2019, in the Beth Emeth Cemetery. Shiva will be held on Sunday, February 17, from 6:30 – 8:30 p.m. at the home of Katherine and Michael Rosenblatt, 6 Fife Dr., Slingerlands. Donations in memory of Didier Thomas may be made to the Waterworks Museum waterworksmuseum.org To leave a condolence message for the family, please visit, levinememorialchapel.com


Lookin for people with PD for research study

A clinical study for adults with recently diagnosed Parkinson’s Disease. MOLECULAR AND FUNCTIONAL BIOMARKERS OF PARKINSON’S DISEASE

OVERVIEW The purpose of this study is to help identify molecules in the saliva, called microRNAs, that can serve as biomarkers for Parkinson’s disease. These biomarkers may allow earlier diagnosis and treatment of this disease. A doctor will ask each participant to perform a brief series of neurological tests, in addition to cognitive and balance tests. A small amount of saliva will then be collected in order to measure microRNA. We offer flexible scheduling.

GOAL OF THIS STUDY Currently, only a very small number of biological tests are available for early diagnosis of Parkinson’s Disease, and these are not informative for all types of the disease. By finding microRNA markers with higher levels in Parkinson’s patients, we may be able to diagnose this disease at an earlier stage and also improve our understanding of the disease. We hope that by discovering new markers and earlier diagnosis of Parkinson’s disease, the quality of life of patients can be improved. DO YOU QUALIFY? We are looking for participants recently diagnosed with Parkinson’s Disease. As a small compensation for your participation, each participant will receive $25. We will also pay for parking

FOR MORE INFORMATION or to schedule your participation, visit the study website and complete a contact form at: https://quadrantbiosciences.com/parkinsonsresearch/ If you qualify for the study, an information packet will be mailed to you prior to your study appointment.

Get printable tri-fold brochure about the study:


April 13, 2019 – Pints for Parkinson’s

April 13, 2019 3PM at Martel’s at Capital Hills 65 ONeil Rd, Albany, New York 12208

Hosted by Karen Toomey Chenel and Lisa Toomey Silipo

Open to all. My family would love it if you could come share some pints and tasty snacks with us on April 13th at Martels! All proceeds will go to Albany Medical Center’s Parkinson’s Research Program in honor of my Dad! ♥️ Please send in payment by April 11th!!

No photo description available.



March 30, 2019 – Bruce Plotsky’s 60th Birthday Party!

Come as a Super Hero … or you will be assigned one.
Must be 21 or older … let’s not traumatize youngsters.
When: Saturday March 30, 2019 … 7pm to 10pm
Where: American Legion, 16 W. Poplar Drive, Delmar
Why: Bruce’s Birthday and Hope Soars Fundraiser

The party…there will be a DJ Extraordinaire.  Be prepared to dance!
There will be finger food, snacks, and a cash bar.
There will be prizes. Categories include:
Most original, Closest to the “actual” Super Hero, Most likely Super Hero to get arrested,  plus more…
Lots of Audience participation.

Some Costume Ideas:
The Super Hero you always knew you were (Wonder Woman, Spider Man, Captain America, The Hulk, etc.).
Go for it…How many times will you be able to show who you really are (in public).
Use your imagination….
Any of the “Super Heroes” from the movie Mystery Men (including PMS Girl).
Superman… the later years. With a big belly, 3 day beard growth, and a can of cheap beer.
Super Hero of Little Help:
Jar Man…able to open stuck glass jars.
Tissue Girl… Always ready with a tissue.
The Future Tellers … two people trade off telling the future, second person correcting it/down playing it.
     1st person: There will be a huge amount of water falling from the sky tomorrow. 2nd person: It’s going to rain

No gifts please, but contributions to Hope Soars is greatly appreciated (whether or not you come to the party).
 All money raised is put towards local Parkinson’s Support programs and research. See:   http://www.hopesoars.org

Some of the many programs Hope Soars helps fund:

  • PD Spin (Stationary bike) classes at most Capital District YMCAs.
  • PD Dance class Tuesdays at the Cicotti Center (Colonie, off of Wolf Road).
  • Yoga for PD Thursdays at Honest Weight (Albany).
  • PD Boxing class Fridays at Schott’s Boxing (Albany).

Carleton A. Foster | 1935 – 2018 | Obituary

Carleton A. Foster, 83, of Jackson, passed away Tuesday, Christmas Day, Dec. 25, 2018 at the Center for Nursing and Rehabilitation at Hoosick Falls.

Carleton was born a Shushan farm boy on Sept. 20, 1935 and was the son of the late Anderson and Clara (Vaughn) Foster. He attended a two-room schoolhouse in Shushan and graduated from Salem Washington Academy. He had worked at Nash Rambler & Studebaker and also at Reynolds Tool & Die before starting his own business, “Puzzleworks” making children’s wooden puzzles and the business became C.A. Foster design & creator of fine cherry wood kitchen utensils and cherry wood sculptures.

Carleton was a charter member of the Valley Artisan’s Market, where his cherry wood creations were displayed and sold. He also was noted for the beautiful baritone voice and trained at the Troy Conservatory of Music. He was past President of the Washington County Historical Society and the Battenkill Snow Drifters. He was Past Master of the Cambridge Valley Lodge No. 481 F&AM Masonic Lodge; he was Lecturer of the Cambridge Valley No. 147 Order of the Eastern Star. Carleton also supported the Covered Bridge Association, the Cambridge Historical Society & Museum, and the Historic Salem Courthouse.

He enjoyed Formula 1 racing and working at Lime Rock Park in Connecticut and also at Watkins Glen. Carleton did hill climb racing and was a Marshal for road races. He was noted at the Saratoga Auto Museum as a driver.

He had a variety of interests which include painting and sketching and watching University of Connecticut Women’s Basketball. He started the annual tradition of the Shushan Bonfire.

In addition to his parents, he was predeceased by his first wife, Joan Tully Foster.

Carleton is survived by his wife, Carol Brownell; his children, Lydia (Christopher) Owen of Columbia, South Carolina and Hillary (Rev. Jarrett) Allebach of Worcester, Massachusetts; a brother, George Foster of Shushan; mother-in-law, Leta Tully of Cambridge; grandchildren, Vaughn, Aquilla, Blaize, Porsha, Ty, Wesley, Briana and Isaac. He is also survived by many nieces and nephews.

Memorial contributions in memory of Carleton may be made to the Center for Nursing and Rehabilitation at Hoosick Falls, 21 Danforth St., Hoosick Falls, NY 12090 Attn: Resident Fund or Michael J. Fox Foundation for Parkinson’s Research, P.O. Box 5014, Hagerstown, MD 21741-5014.

Arrangements are with Ackley, Ross & Gariepy Funeral Home, Cambridge.


Caregiver online resources

[The Parkinson’s Podcast™ ]
ADVICE FOR PARKINSON’S CARE PARTNERS WITH CONNIE CARPENTER PHINNEY
https://www.davisphinneyfoundation.org/blog/podcast-advice-for-parkinsons-care-partners-connie-carpenter-phinney/

​​Caring and Coping is a comprehensive guide for caregivers of people with Parkinson’s at any stage.
https://parkinson.org/pd-library/books/caring-and-coping

Caring for You (the Caregiver)
You may be involved in assisting your loved one with many activities of daily living and medical tasks, as well as maintaining a household; shopping and preparing meals; organizing records, papers and appointments; transporting your loved one to health care visits; keeping up with social and family relationships and many other tasks. At the same time, you may be working, raising children or grandchildren or coping with your own health or personal issues.
https://parkinson.org/pd-library/tip-sheets/caring-for-you

PD Partnership
https://f5h3y5n7.stackpathcdn.com/sites/default/files/attachments/pd_partnership_14.pdf

Intimacy and PD
https://f5h3y5n7.stackpathcdn.com/sites/default/files/Intimacy%20and%20PD.pdf

Communication and PD
https://www.parkinson.org/sites/default/files/Communication.pdf

Slides from PD Expert Briefing: What’s Missing? Communication and the PD Partnership https://www.parkinson.org/sites/default/files/Communication.pdf

BOOKS

Caring with Courage and Compassion
https://www.amazon.com/Caring-Courage-Compassion/dp/B0039OIOTI


Parkinson’s Disease and the Family
https://www.amazon.com/Parkinsons-Disease-Family-Harvard-University/dp/067401751X

Journaling Toward Wholeness
https://www.amazon.com/Journaling-Toward-Wholeness-Develop-Practice-ebook/dp/B0714L6Y4P


Michael E. Neaton of Green Island, New York | 1940 – 2019 | Obituary

Michael Edward Neaton passed into eternal life, at the home he was born in, on Wednesday, January 16, 2019. At his side was his life partner and caregiver Geri de Seve. Michael’s grace, enthusiasm for life and incredibly positive attitude never faded during his long battle with Parkinson’s disease.

Born on May 20, 1940 in Green Island NY, Michael was the youngest of six children of Jane and William Neaton. He graduated from Catholic Central High School in 1958 and was ordained into the Roman Catholic priesthood in 1966.

During his time at St Mary’s parish from 1969 to 1972, he earned a Master’s Degree in counseling and was the Director of the CYO in Troy, NY. In 1973, after serving as a monk at Weston Priory, he co-founded The Priory of St. Benedict in Chestertown, NY.  Known for his work throughout the Adirondack community, he was a beloved, vibrant presence there.

Michael lived humbly and spread messages of love, respect and inclusion. He continued his progressive commitment to social issues as he returned to civilian life in 1986. He worked for 16 years as an education counselor at Coxsackie and Green Correctional Facilities.

He met the love of his life, Geri de Seve, in 1990, and quickly captured her heart with his radiant smile. For over 28 years they shared family, travel, opera, skiing and hiking. In the 1990s, Michael became a “46er,” having climbed all 46 Adirondack high peaks.  He served on the Board of Governors of the ADK Mountain Club, and also served his Green Island community as a Town Councilman.

Michael was predeceased by his brothers Bernard (Terry) and James, and his sister Mary Jane (late Paul) Zimmer. He is survived by his siblings, William (Marlin) and John (late Lupe) Neaton, and several nieces and nephews, as well as Geri and her family, Steve (Sabine Aronowsky), Mike (Daniela Kostova), Jim (Kian Tjong) and Karen (John Fairbairn) de Seve. He was “Grandpa Michael” to Delphine, Vega, Ellery and Cyane.

Many thanks to the wonderful friends who visited Michael at home over the years, to his service coordinator, to the staffs at Eddy Daybreak in Cohoes, and at Albany VNA, to his nurses and therapists, and especially to his dedicated caregivers, Patty, Allene, Ugonda, Shameika, Rashida, Philip, Kasanna, Seanyel and Brenda.  Without their help Michael could not have stayed in his home. Thanks also to Patty, Bob and Rick for their special help, to Dr. Eric Molho and to Doctor Kevin Costello for his amazing care.

Funeral from the McNulty Funeral Home, 147 Hudson Avenue, Green Island on Saturday, January 26 at 8:45 a.m. and at Our Lady of Victory Church, 55 North Lake Avenue in Troy at 9:30 a.m. where a Mass of Christian Burial will be celebrated by Rev. Randall Patterson.   Interment will be beside his parents in St. Peter’s Cemetery, Troy.  If desired, donations may be made to Joseph’s House or to Unity House’s Deuteronomy fund.


Poster and cards added to Albany Med movement disorder office

Part of the mission of the Capital District Parkinson’s Support Group is to increase awareness.  To that end, having accessible information about our group in the doctor’s office should increase attendance and diversity.

We now have a poster hanging in the waiting room of the Albany Medical Center movement disorder clinic.  There are also matching business cards to take.

Thank you to Jud Eson, Nancy Eson and Rachel Eson, for help on the poster and card  design.


Researchers developing new therapy to treat Parkinson’s disease

Recent strides in stem cell technology mean that quality, consistency, activity, and safety can be assured and that it is possible to grow essentially unlimited amounts of dopamine-producing nerve cells in the laboratory for transplantation, said a study, published in the Journal of Parkinson’s Disease. Read more….

https://www.timesnownews.com/health/article/researchers-developing-new-therapy-to-treat-parkinsons-disease/367794


July 11, 2019 meeting notice

Join the CDPSG Support Group for the monthly meeting.

July 11, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

Topic: Reflections from the World Parkinson’s Congress in Kyoto Japan as told by Albany members that went to the conference.


June 13, 2019 meeting notice

Join the CDPSG Support Group for the monthly meeting.

June 13, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

To be determined


March 5, 2019 – Expert Briefing – Seeing Clearly with PD: Vision Changes

Expert Briefing – Seeing Clearly with PD: Vision Changes

Visual changes can impact daily fuction and quality of life for people living with Parkinson’s. In this webinar, Dr. Daniel R. Gold will share the most common visual changes, explain why these conditions exist and address ways to treat them.

Learn more about vision changes with PD, such as ocular surface irritation, hallucinations and blurry vision, by registering for our free Expert Briefing webinar taking place on Tuesday, March 5, 2019 from 1:00-2:00 p.m. ET.

Who: Dan Gold, DO, Assistant Professor of Neurology, Opthalmology, Neurosurgery, Otolaryngology-Head and Neck Surgery at The Johns Hopkins Hospital.

How to Watch: Register here to watch online or listen by phone.


April 6th, 2019 – Tools for Caregivers

Resources You Can Use When a Senior Relies on You.

When: April 6th, 2019

Where: at the Bulmer Communications Center at HVCC .

A free event for you – the caregiver – to learn, share and explore the many different services and options available to the seniors of the Capital Region. Attend educational workshops and meet with local professionals at the vendor fair. Registration is required. Please email crccreg@gmail.com or call Angela at 518- 279-5502 to register. Click here for more info: Tools for Caregivers 2019


Can we repair the brain? The promise of stem cell technologies for treating Parkinson’s disease

Cell replacement may play an increasing role in alleviating the motor symptoms of Parkinson’s disease (PD) in future. Writing in a special supplement to the Journal of Parkinson’s Disease, experts describe how newly developed stem cell technologies could be used to treat the disease and discuss the great promise, as well as the significant challenges, of stem cell treatment.

Read more https://www.sciencedaily.com/releases/2019/02/190214153141.htm