PD SELF – a learning program designed to help people with Parkinson’s better manage their disease


PD SELF – Parkinson’s Self-Efficacy Learning Forum – A national program, now being offered in Albany for the first time, that provides people with Parkinson’s with an in-depth understanding of the disease and the tools to manage it with confidence.  There is no cost to attend.  Registration is required.  Space is limited.

PD SELF is a learning program designed to help people diagnosed with Parkinson’s in the last three years manage their disease and their life with Parkinson’s.  We will learn about the disease and how to approach goals, tasks and challenges.

The first session will be held on Wednesday, September 12, 2018 from 4:00 – 7:00.  There will be a total of eight monthly sessions. Each subsequent session will be from 4:00 – 7:00 on the second Wednesday of the month.  We will meet at the Terrace Community Room at Beverwyck in Slingerlands. – 41 Beverwyck Lane, Slingerlands, NY 12159. (Map) (directions)

Debra Virtanen and Jud Eson traveled to Denver in May to attend a training course to learn how to facilitate the PD SELF program.  Facilitation teams, including a person with a clinical background and a person with PD, came from 11 locations across the country to learn.  Team Albany included Debra, a physical therapist, and Jud, a person with Parkinson’s.  The program has been active for three years. This is the first time it will be offered in this area. This program is distinct and separate from the Capital District Parkinson’s Support Group.

Many people are handed a diagnosis with very little guidance on what to do next. But the diagnosis is life changing. Facing life with a chronic progressive disease means facing changes to health, relationships, family life, employment and finances.

Research tells us that when people are given the resources to cope with these changes, they are empowered to take an active role in managing PD, leading to better health and quality of life.

Participants are provided with a PD SELF Curriculum Field Guide containing the course content for each of the eight modules.

  1. Adapting to Parkinson’s Disease
  2. Acquiring Self-Efficacy
  3. Creating your personal health care network
  4. Understanding PD medications and treatments including complementary and alternative medicine
  5. Benefiting from exercise and neuroplasticity
  6. Understanding cognition and nonmotor symptoms
  7. Strengthening the relationship between people with Parkinson’s and Care Partner
  8. Going forward

Over the eight modules, participants learn how to master their own relationship to Parkinson’s. The skills and behaviors learned include:

  • Setting and achieving goals
  • Self-monitoring
  • Keeping health care records
  • Communicating with your doctor
  • Establishing new routines
  • Overcoming obstacles
  • Problem solving
  • Reflection and journaling
  • Managing negative emotions
  • Realistic optimism
  • Resilience and tenacity
  • Self-Advocacy

For more information and to register, please visit the PD SELF website at PDSELF.org or send an email to PDSELF.Albany@gmail.com .

If you are interested  in registering, fill out an interest form


Spread the word with these flyers

Printable PD SELF flyer

Printable Flyer #2 PD SELF Albany Flyer

Printable pd self cards