on-line resource

FREE Parkinson’s print materials available

There are a ton of great, FREE Parkinson’s print materials available – you just have to know where to look!  This is by no means a complete list however these items are particularly useful.

Davis Phinney Foundation Every Victory Counts book 

Parkinson’s Foundation “Aware in Care” kit, Caring and Coping guide, other handbooks

  • Visit www.parkinson.org
  • Click the “Ways to Give” tab at the top of the page
  • Click “Shop” (everything is free)
  • Select the item(s) you want to receive
    • For booklets, you have the option of downloading as a PDF
  • Click Add to Cart
  • When you’re done shopping, click “Checkout”
  • Fill in the required information.  If you do not want to receive emails from the PF, make sure to uncheck that box.
  • Need assistance or don’t have internet access?  Call 800-473-4636 to order.

APDA Materials

  • Visit https://www.apdaparkinson.org/resources-support/download-publications/
  • To download DIGITAL versions, select the booklet(s) or supplement(s) that you want to download.
  • To order PRINT copies, click the link near the top of the page that says, “You can also order print publications directly from us using this form.”
    • Fill in the required information.
    • Once you do that, available publications will be displayed.

 online education, I would suggest the sources below.  Please note that the webinars are archived on these sites so you do not have to view the webinar during it’s “live” broadcast.

Organizations that can be trusted for good information about PD

Here is a list of organizations that can be trusted for good information

  • National Parkinson’s Foundation helps patients actively enjoy life through expert care and treatment research.
  • American Parkinson’s Disease Association provides support, education, and research to help you live a fuller life.
  •  Michael J. Fox Foundation is helping to raise money for much-needed research to help find a cure. From ways you can get involved to a great blog chock-full of Parkinson’s-related information, there is so much information here
  •  Parkinson’s Disease Foundation provides information including news about the disease, information about upcoming events, insight into the latest research, and education about what to expect.
  • The Davis Phinney Foundation is committed to supporting programs as well as research that help to deliver inspiration, information and provide tools that will enable people living with Parkinson’s to have more control in managing their disease.
  • EVERY VICTORY COUNTS® Davis Phinney Foundation Essential Information and Inspiration for a Lifetime of Wellness with Parkinson’s Disease. A must read. http://cdparkinsons.org/wp-content/uploads/2016/08/DPF-EVC_2014-2.pdf
  • The Parkinson Alliance is the umbrella organization for the Parkinson’s Unity Walk that takes place every spring in New York City. They also sponsor Team Parkinson, a fundraising racing event. You can find current news and information on research projects on their site.
  • Partners in Parkinson’s has a program where you can be connected to an advocate who will listen, offer advice and support to patients and caregivers at no cost. This is just one of the services you can find through Partners in Parkinson’s.
  • Caring.com has a support group for caregivers, family and friends of those with Parkinson’s disease. No subject is off-limits in this forum.
  • The National Parkinson Foundation has a site specifically geared to caregivers. They help carers navigate the emotional, financial, and physical challenges they may face caring for someone with Parkinson’s

Medical & Rehabiliation Care, Assistive Technology

General Care