Health and Wellness


National Parkinson Foundation toll-free Helpline

The National Parkinson Foundation (NPF) runs a toll-free Helpline, 1-800-4PD-INFO, (473-4636) The lifesaving NPF Helpline, launched in 2010, is staffed by a team of patient-focused nurses, social workers and therapists who answer calls about Parkinson’s disease (PD) in English and in Spanish Monday through Friday from 9 a.m. to 5 p.m. EST.

“NPF’s Helpline links our groundbreaking research to improve the lives of people with Parkinson’s today directly with the community we serve,” I know this first hand because the Helpline has made a difference in the life of my mother, who is living with Parkinson’s.” –John Kozyak, NPF’s Chairman of the Board. ”

“We’re more than just an information line. We truly care about the people we serve and that’s the key to our success, Whether you have yet to receive a diagnosis, are recently diagnosed with Parkinson’s, or caring for a family member with the disease, we are here to help you understand your condition, your care, and the latest research on how patients can live their best lives with Parkinson’s. We spend as much as 45 minutes on calls with those who have been recently diagnosed – more than three times the average – because we can really make a difference.” –  Adolfo Diaz, NPF’s Director of Patient Services who manages the Helpline.”

NPF’s Helpline Specialists help callers locate resources in their area, as well as send a customized informational packet after the call. The NPF packets arm people with Parkinson’s and their families with helpful information on preparing for an appointment with their general practitioner or movement disorder specialist. People with Parkinson’s disease, their care partners and families are invited to call to receive emotional support and referrals to health professionals and community resources. A wide variety of helpful NPF publications and the Aware in Care kit are also available for order through the Helpline.

NPF also has an online video series called, “Ask the Helpline,” where our PD Specialists answer the most frequently asked questions including: why exercise is important, what role a movement disorder specialist plays and how the role of caregiver changes over time.

People with questions about PD may also e-mail the NPF Helpline at helpline@parkinson.org.

 


ELISPOON – the bowl of the spoon remains horizontal and keeps the food in place.

Whatever movement of the wrist is performed, the bowl of the spoon remains horizontal and keeps the food in place.

The material used is lightweight and strong.  A key characteristic is the spoon’s affordability.

There are no electrical components or batteries, making it carry anywhere and to clean.

ELISPOON is a product designed and built to ease the life of the users and their love.

Two graduates from Israel’s Technion developed a spoon that their child with motor co-ordination problems could use without spilling its contents.   Now anyone can buy it. Useful also for the elderly or anyone suffering from tremor


Use the website forum to ask a question or start a discussion

An Internet forum is a discussion area on a website. Website members can post discussions and read and respond to posts by other forum members. A forum can be focused on nearly any subject and a sense of an online community, or virtual community, tends to develop among forum members. A forum usually allows all members to make posts and start new topics.

 

Start a discussion or ask a question by starting here.

 


Michael J Fox Foundation, ‘Faces of Parkinson’s’, 2014


The benefits of Tai Chi

It isn’t every day that an effective new treatment for some Parkinson’s disease symptoms comes along. Especially one that is safe, causes no adverse side effects, and may also benefit the rest of the body and the mind. That’s why I read with excitement and interest a report in the New England Journal of Medicine showing that tai chi may improve balance and prevent falls among people with Parkinson’s disease. Tai chi improves balance and motor control in Parkinson’s disease

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Oregon Research Institute Tai Chi Program helps Parkinson’s Disease Patients

An Oregon Research Institute (ORI) exercise study conducted in four Oregon cities has shown significant benefits for patients with mild-to-moderate Parkinson’s disease. In an original article published in the February 9, 2012 issue of the New England Journal of Medicine(NEJM), ORI scientist Fuzhong Li, Ph.D. and colleagues report that a tailored program of twice-weekly Tai Chi training resulted in improved postural stability and walking ability, and reduced falls in the participants.

Read more 


LSVT Loud and LSVT Big – voice and movement treatments

Recent advances in neuroscience have suggested that exercise-based behavioral treatments may improve function and possibly slow progression of motor symptoms in individuals with Parkinson disease (PD). The LSVT (Lee Silverman Voice Treatment) Programs for individuals with PD have been developed and researched over the past 20 years beginning with a focus on the speech motor system (LSVT LOUD) and more recently have been extended to address limb motor systems (LSVT BIG).

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Parkinson’s Disease and Diet

Overview

No one specific diet is recommended for everyone with Parkinson’s disease (PD). Still, what you eat may impact how well your medication works and can help some of the non-motor symptoms that are associated with PD. For general health and well-being, doctors encourage people with Parkinson’s to follow a balanced diet, which includes whole grains, healthy fats (in foods like nuts, avocado and olive oil) and antioxidants.

Get the Parkinson’s and Diet printable booklet from the MJ Fox foundation.


Constipation

Difficulty swallowing, feelings of nausea or bloating, constipation, and difficulty eliminating are all common symptoms of PD.

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World Parkinson’s Congress 2016

The triennial World Parkinson Congresses provide an international forum for dialogue on the latest scientific discoveries, medical practices, and caregiver initiatives related to Parkinson’s disease.

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Coffee is your friend

coffee-beans-1400Caffeine-based compounds show promise against Parkinson’s disease

Two caffeine-based chemical compounds have been developed that show promise in preventing the ravages of Parkinson’s disease. Parkinson’s disease attacks the nervous system, causing uncontrolled shakes, muscle stiffness, and slow, imprecise movement, chiefly in middle-aged and elderly people. It is caused by the loss of brain cells (neurons) that produce dopamine, an essential neurotransmitter that allows neurons to “talk” to each other.

Read more

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Educational Brochures

Image result for brochure parkinson's sampleInformation and research about Parkinson’s Disease is changing quickly.  Depending on information that is more than a few years old is not advised.
We are not endorsing or guaranteeing the accuracy of any of the supplied links.  We have not created, reviewed (or even read) all of the educational material referenced.  You may find outdated, false of contradictory information.
You may want to find the material(s) that would be useful to you and/or your patients and ask a doctor familiar with PD to review them before handing them out.

From the Michael J. Fox Foundation:

Educational Web Pages at https://www.michaeljfox.org/understanding-parkinsons/index.html?navid=understanding-pd


From Parkinson’s Disease Foundatation

PDF offers a variety of educational publications and programs for people with Parkinson’s, their caregivers and families and allied health professionals.  These materials can help answer questions about Parkinson’s disease symptoms, medications, medical care, exercise and nutrition, among other issues.

You can download all materials by using the links below and to the left.  You can also order most of these materials online free of charge, for yourself or, in bulk for your practice, hospital or support group.

Brochures and Booklets
These informational brochures help you understand Parkinson’s and find resources in the community. Order your copies online today or download each individually.

Videos/DVDs
PDF offers one free educational DVD/video, Diagnosis Parkinson’s Disease: You Are Not AlonePlease click here to read more and order this program online.

Fact Sheets
PDF’s fact sheets discuss your concerns about nutrition, diet, exercise and more, providing tips on how to improve daily life with Parkinson’s. These are written by physicians and people living with or affected by Parkinson’s. You can order print copies of the fact sheets or download those that interest you from our selection of 35+ fact sheets.

Online Seminars

PDF reserves a limited supply of DVDs of our previous series of PD ExpertBriefings for those unable to watch via computer. If you would like to order this set to watch at home or with your support group members, please read more and download our order form.

http://www.pdf.org/brochureshttp://www.pdf.org/newsletters_pubs


From APDA

http://www.apdaparkinson.org/resources-support/download-publications/


From American Academy of Neurology

Parkinson’s disease (PD) is a movement disorder. In people with PD, a vital chemical in the brain called dopamine is gradually reduced. This brings on symptoms of tremor, slowness in movement, stiff limbs, and walking or balance problems.


Ohio State University Wexner Medical Center

https://patienteducation.osumc.edu/pages/patienteducation/atoztopicdetail.aspx?t=Parkinson%27s%20Disease


Preventing falls

Image result for fallingIf you or a loved one has Parkinson’s disease, here are tips for preventing falls around the home:

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PARKINSON’S: stand. freeze? move!

Here’s EZ ways to get “unstuck” or help your Parkinson’s partner or relative when they find themselves struggling to take a step.


The Every Victory Counts® Manual – Davis Phinney Foundation

Essential Information and Inspiration for a Lifetime of Wellness

Unique in the world of Parkinson’s resources, the Every Victory Counts® manual gives people living with Parkinson’s – and their caregivers and family members – the tools they need to take control of their own Parkinson’s treatment through a proactive approach to self-care.

Click to read and/or download the book as a PDF file (5mb, 275 page printable book)

Every_Victory_Counts_2017

or get your free printed or digital edition from the Davis Finney Foundatiion


On-line resources

These Parkinson’s disease (PD) resources will help you find more information and connect with others living with the condition. Many of these sites will direct you to the latest Parkinson’s disease news and research, as well as opportunities to get involved with local chapters and organizations.

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Ten nutrition tips for living well with Parkinson’s

1) VITAMIN D – Studies have shown widespread deficiency of vitamin D among people with PD; whether it contributes to the development of PD, or is a result of PD, is not yet known. But deficiency is associated with falls and fractures, diabetes, cancers and autoimmune diseases. You may want to ask your doctor to check your Vitamin D level, and take supplements as needed.

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Bone Thinning

As Parkinson’s progresses, mobility challenges become more common, including an increased risk of falls. Unfortunately, studies have shown that people with PD are also at increased risk for bone thinning, a combination that can lead to injury.

Therefore, it is especially important for people with PD to eat meals that provide bone-strengthening nutrients, such as calcium, magnesium and vitamins D and K. Regular exposure to sunlight is also helpful, as it increases vitamin D in the body.

Walking and other weight-bearing exercises can keep bones strong and less likely to fracture or break.


YMCA Parkinson’s Wellness Program

The Capital District YMCA is now offering Parkinson’s Wellness Program (PWP!) Training! The class is neuroplasticity-principled and holds promise to slow disease progression, retire motor function, and increase longevity and quality of life. The class will be led by certified instructors trained in PWP! Fitness, and Gary Z Sobol Parkinson’s Network (GZSPN™) by Gail Borden of Marblehead, MA.

Participants should be able to walk and stand unassisted. Individuals with MS or in Post Stroke Recovery are also encouraged to attend, with participant waiver and medical clearance. Please see the table below for more information on specific class times.

7 Week Sessions are ongoing, check your local branch for more details.
1x weekly: Members $45, Community $56 / 2x weekly: Members $80, Community $91
Caregivers are welcome with paid registration.

Branch Day Time Instructor
Bethlehem Thursdays 12:00pm Nancy Janosi
Glenville Fridays 10:15am Lisa Temoshok
Greenbush Fridays 10:30am Sondra Tucker
Guilderland Wednesdays 1:45pm Kathy Napoli
Schenectady Wednesdays 6:00pm Myra Woods
Southern Saratoga Thursdays 10:30am Shannon Felix
Troy Mondays 11:30am Tammy Roberts
and
Michael Malone