Events


November 3, 2018 – Don’t Fall Stand Tall: Balance/Fall Risk Assessment

09:00 AM – 12:00 PM — …

Date: November 3, 2018
Time: 9:00 a.m. – 12:00 p.m.
Location: Regional Therapy Center, 225 Washington Street, Saratoga Springs
Fee: Free. Space is limited.

Join us for a FREE balance/fall risk assessment using standardized testing and the most current research. You will be screened by skilled, licensed physical and occupational therapists from the Regional Therapy Center, who will also offer tips to help prevent falls.

Each screening will take approximately 30 minutes. Please wear comfortable clothing and sneakers.

Registration is required. Please call Saratoga Hospital Healthsource at 518-580-2450 or


February 14, 2019  meeting notice

Join the CDPSG Support Group for the monthly meeting.

February 14, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

Tom Ford – Massage tharapy


Hope Soars Gala 2018 – cancelled

The Hope Soars Gala will not be held this year.
Hope Soars underwrites many of the PD programs in the Capital District so that they are able to be offered at no or low cost.  Hope Soars also contributes to Parkinson’s Disease Research at Albany Medical Center’s Movement Disorders Center.
The gala funds a large part of this. Since it is not being held this year  this will probably stretch the organization’s resources a bit thinner than other years. While they would always welcome donations at any time, please keep Hope Soars  in mind especially this year if you should find a little extra in your wallet or pocketbook. The organization isn’t asking for this, but we know that it would be welcome, and it supports all of us, so please keep it in mind.
And, if you haven’t checked out any of the great PD programs they support, Please Do!  You can find all of them on www.hopesoars.org.  Try out PD yoga, boxing, dance, peddling4parkinsons, special events like the walk….it’s all there.
Thanks!
Cindy Petker

The Albany Guardian Society 2018 Fall 2018 Institute semester

The Albany Guardian Society 2018 Fall Institute semester offers programs in the following broad categories:

Read more at http://www.albanyguardiansociety.org/fall18catalog.php

  • Caregiving
  • Community Engagement
  • Health + Wellness
  • Housing
  • Legal
  • Professional Development
  • Technology

These categories offer a variety of selections on topics of importance to a wide audience. Please scroll down to see all of the Institute’s offerings for the Fall 2018 semester.

There is no cost to attend our programs; however, registration is required for each course you wish to attend. To register, simply press the “Register Button” next to the class description and complete the registration form. If you are unable to complete an online registration, please contact Albany Guardian Society and we will provide assistance.

If you have any questions regarding the Institute or are unable to attend a class once you have registered, please call Albany Guardian Society at 518-434-2140 or email us at ags@albanyguardiansociety.org.

 


October 11, 2018 Onondaga County Office for Aging – Living an Active Life with Parkinson’s Disease Conference

Conference Date – Thursday, October 11, 2018

Please join us for the Sixth Annual Onondaga County “Living an Active Life with Parkinson’s Disease” Conference. This free day of learning is offered by the Onondaga County Office for Aging and Upstate University Hospital’s HealthLink and it will be held at the Holiday Inn, 441 Electronics Parkway, Liverpool, NY 13088.

Check-in is from 8:15 am to 8:45 am and the program runs from 9:00 am to 2:15 pm and includes lunch.

The conference host, Susan Kennedy, will introduce the following speakers:

Sarah King, PT, DPT

– Redefining Your Diagnosis
– How to Build Your Parkinson’s Plan of Attack
– Exercise is Medicine – Movement Workshop
Michelle Burack, MD
Gut-Brain Connections in Parkinson’s
Fahed Saada, MD, Neurologist
Psychological Issues with Parkinson’s Disease

There is no cost for the conference and lunch but registration is required as space is limited. To register, please call Upstate Connect at 315-464-8668.

The deadline for registration is Friday, October 5, 2018.

Please feel free to print, post and distribute the attached flyer.

Thank you.

Ellen M. McCauley
Public Information Specialist

Onondaga County
Department of Adult & Long Term Care Services

(Aging, Mental Health, NY Connects, Protective Services, Veterans)
421 Montgomery Street, 10th Floor

Syracuse, NY 13202

Phone: (315) 435-2362 Ext. 4942; Fax: (315) 435-3129

Email: EllenMcCauley@ongov.net

Website: www.ongov.net; Department www.ongov.net/adult


June 4, 2019 Kyoto Japan – World Parkinson’s Congress

The World Parkinson’s Congress is held every three years. The last one was in 2016 in Portland Oregon The next one in Japan.

http://www.wpc2019.org/?page=AboutCongress

There has been strong interest in our support group in attending the next World Parkinson’s Congress in Kyoto, Japan.

Letter from Ian Wing

I should emphasize that I am happy to play a coordinating and advisory role but cannot be a travel agent or “guide” in the traditional sense. Attendees will need to make their own travel and accommodation arrangements. I will be happy to make suggestions and, depending on the level of interest, organize some sight seeing in Tokyo prior to the Congress.

THE CONGRESS  – www.wpc2019.org

This is held every three years and brings together doctors, researchers, clinicians, people living with PD, caregivers and others. Participants are from all over the world and there is a great deal of interaction between participants. There were more than 4000 participants in Portland.

Sharon and I have attended the past two congresses in Montreal and Portland, OR and a stand out feature was the vigorous debate between medical professionals and also between people living with PD, their caregivers and clinicians. In the summing up session in Portland, several medical professionals said that the Congress was unique in that they received much valuable feedback – and push back – from people living with PD. As it is a world congress, participants are able to share knowledge and experience from many countries.

The web site is up and contains a lot of general information.

According to the organisers, attendance is going to be limited and registration will open on September 10. The cost is $300 for people with PD and also for caregivers. The cost increases to $350 after Feb 28 2019.

ACCOMMODATION AT THE CONGRESS

The organisers make arrangements with specific hotels near the venue and represent the full range from high end to moderate. In both Montreal and Portland the moderately priced accommodation booked out very quickly. The website is suggesting $150/night as the average for Kyoto.

There are other options such as Airbnb and “business hotels”  – but you need to keep in mind that Japan is a very densely populated country and space is always at a premium. The cheaper end will have very small rooms and bathrooms. Also, Kyoto is a hilly city and roads are very narrow with narrow sidewalks if at all.

For that reason and because trains and buses are often crowded and not designed for large pieces of luggage I cannot emphasise strongly enough that you need to minimize the amount of baggage you bring with you.

TRAVEL

Expedia is showing economy fares from JFK and Boston to Tokyo (Narita (90km from central Tokyo) – or Haneda (20km)  ranging from about $850 on Chinese airlines via Beijing or Shanghai to nearly $2000 on US or Japan Airlines.

The nearest international airport to Kyoto is Osaka – Kansai International (KIX). Flights are more expensive than to Tokyo – particularly n US airlines.

Japan Airlines is offering a fare of $2600 JFK – Tokyo in their premium economy cabin – which I have found to be very good. Some people have also expressed interest in travelling to Australia after the congress and the fare JFK – Tokyo – Sydney return is $2700 in premium economy.

I have found the expedia “bundled” deals of travel and accommodation to be very good value in Japan – but again, you get what you pay for – rooms at the APA chain of hotels contain a double bed and approximately one foot of space around it – about 9 sq ft at the entrance and a bathroom about 12 sq feet. The very confined space can be challenge to those of us who have balance or movement issues.

TOKYO

While Kyoto is a fascinating city and, as the capital of Japan from 794 AD until 1868, contains a great deal of history, first time visitors should definitely spend a few days in Tokyo, one of the world’s great cities. Sharon and I lived there for 8 years and are familiar with its layout and points of interest. It has an extensive and extremely efficient subway system but does involve a lot of walking and stairs – and must be avoided in rush hour (the Japanese have an expression – “sushizume” – which means jammed into the train like grains of sushi rice in a mold. )

Taxis are plentiful but are expensive and very few drivers speak English.

I am looking into hiring a mini bus and driver which we could use to do our own tour. Cost is about Yen90000 – $800 – or $50 per person for a 16 seater.

If participants would like to spend say 3 days in Tokyo – I suggest we plan on arriving in Tokyo on May 31 – leaving the USA on 29/30 May.

The conference begins on Tues June 4 in the afternoon and we could depart for Kyoto on the Shinkansen (Bullet train –  200 mph) on Tues morning – travel time is 2 hours 15 mins. Cost is about $200 one way for a reserved seat (recommended)

KYOTO

Organisers at past congresses have arranged group tours to places of interest and I expect the Japanese organisers will also do this. Apart from the Imperial Palace, there are a number of famous temples and shrines in Kyoto – Kinkakuji (Golden pavilion) and Ryoan-ji (famous rock garden) – and many others. Kyoto was not damaged in WW2 and so the older parts of Kyoto date back many centuries. This includes the Gion district, home to geisha traditions. The city of Nara is nearby and was the capital prior to Kyoto.

Osaka was totally destroyed during WW2 and so does not feature much on the tourist trail.

Please monitor the web site and let me know if you have questions or need advice on making arrangements.

Commencing in November I propose that people intending to go to Kyoto meet for ½ hour prior to the regular meeting so we can continue the planning.

I’m looking forward to having a capital district group in Kyoto!

Ian Wing