March 5, 2019 – Expert Briefing – Seeing Clearly with PD: Vision Changes

Expert Briefing – Seeing Clearly with PD: Vision Changes

Visual changes can impact daily fuction and quality of life for people living with Parkinson’s. In this webinar, Dr. Daniel R. Gold will share the most common visual changes, explain why these conditions exist and address ways to treat them.

Learn more about vision changes with PD, such as ocular surface irritation, hallucinations and blurry vision, by registering for our free Expert Briefing webinar taking place on Tuesday, March 5, 2019 from 1:00-2:00 p.m. ET.

Who: Dan Gold, DO, Assistant Professor of Neurology, Opthalmology, Neurosurgery, Otolaryngology-Head and Neck Surgery at The Johns Hopkins Hospital.

How to Watch: Register here to watch online or listen by phone.

April 6th, 2019 – Tools for Caregivers

Resources You Can Use When a Senior Relies on You.

When: April 6th, 2019

Where: at the Bulmer Communications Center at HVCC .

A free event for you – the caregiver – to learn, share and explore the many different services and options available to the seniors of the Capital Region. Attend educational workshops and meet with local professionals at the vendor fair. Registration is required. Please email or call Angela at 518- 279-5502 to register. Click here for more info: Tools for Caregivers 2019

May 9, 2019 Meeting notice

Join the CDPSG Support Group for the monthly meeting.

May 9, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

To be determined

August 11, 2019 – Summer Picnic

Join the Capital District Parkinson’s Support Group for our Summer Picnic.

Date: Sunday, August 11
Time: 12 noon until 3:00 pm
Place: The Crossings Park, Colonie

There will be no “regular” Thursday meeting in August. There is no charge to enter the park. The facility has ample parking nearby and  a covered,,wheelchair accessible, pavilion with picnic tables There are wheelchair accessible bathrooms on level ground a short distance from the parking lot and pavilion. Friends, relatives, children, grandchildren and leashed dogs are also welcome.

A number of fun activities are also being planned.


Enter the park from the Albany Shaker Road entrance. Follow the park road 0.6 mile to the end. You will be able to park there and you will see the pavilion.

GPS to the entry to the Crossings Park on Albany Shaker Road:

580 Albany Shaker Road, Loudonville, NY 12211


Directions to the picnic:
Starting from the corner of Wolf Road and Albany Shaker Road (exit 4 on Northway)​
Go east on Albany Shaker (towards Albany).

In .5 mile take first exit of traffic circle to stay on Albany Shaker

In .4 mile turn right into the Crossings Park

Follow park road for .6 mile to end of road at parking circle.

You can see pavilion from there.
For more information about our group and about Parkinson’s visit our website at

February 20, 2019 – Caregiver 12-Week Telephone Support Group

Senior Services of Albany will be conducting a Caregiver 12-Week Telephone Support Group! The group will meet weekly by phone on Wednesdays, 7 p.m. – 8 p.m. from February 20, 2019 to May 8, 2019. This program is supported by the Albany County Department of Aging, the New York State Department of Aging and the Administration for Community Living. The telephone support group provides busy caregivers with the opportunity to participate by phone from the comfort of their homes. The weekly classes will provide support and strategies to:

  • Reduce stress, strain and depression 
  • Solve problems more efficiently 
  • Learn about community resource.

See flyer for more information. Advance registration is required. Either the caregiver or care receiver must reside in Albany County. 

To register, please contact Beth Owen at Senior Services of Albany at (518) 694-3511.

Course:  Balanced Resilience for Family Care Partners – Every Wednesday • January 30th – March 20

Offered by Davis Phinney Foundation

Read more

What: This is an eight-week, live and online course you can attend from home. You will learn simple, evidence-based skills to make being a Parkinson’s care partner more sustainable so you can take better care of yourself and your person with Parkinson’s.When: Every Wednesday • January 30th – March 20
1-2:30 pm PST (4-5:30 pm EST)

Who: This is especially for Parkinson’s care partners

Cost: FREE

Instructor: Judy Long, outpatient palliative care chaplain at UCSF

Register: Enrollment is limited to 20 Parkinson’s care partners. If you want to secure your spot, please email us at

The Albany Guardian Society 2018 Fall 2018 Institute semester

The Albany Guardian Society 2018 Fall Institute semester offers programs in the following broad categories:


  • Caregiving
  • Community Engagement
  • Health + Wellness
  • Housing
  • Legal
  • Professional Development
  • Technology

These categories offer a variety of selections on topics of importance to a wide audience. Please scroll down to see all of the Institute’s offerings for the Fall 2018 semester.

There is no cost to attend our programs; however, registration is required for each course you wish to attend. To register, simply press the “Register Button” next to the class description and complete the registration form. If you are unable to complete an online registration, please contact Albany Guardian Society and we will provide assistance.

If you have any questions regarding the Institute or are unable to attend a class once you have registered, please call Albany Guardian Society at 518-434-2140 or email us at


October 11, 2018 Onondaga County Office for Aging – Living an Active Life with Parkinson’s Disease Conference

Conference Date – Thursday, October 11, 2018

Please join us for the Sixth Annual Onondaga County “Living an Active Life with Parkinson’s Disease” Conference. This free day of learning is offered by the Onondaga County Office for Aging and Upstate University Hospital’s HealthLink and it will be held at the Holiday Inn, 441 Electronics Parkway, Liverpool, NY 13088.

Check-in is from 8:15 am to 8:45 am and the program runs from 9:00 am to 2:15 pm and includes lunch.

The conference host, Susan Kennedy, will introduce the following speakers:

Sarah King, PT, DPT

– Redefining Your Diagnosis
– How to Build Your Parkinson’s Plan of Attack
– Exercise is Medicine – Movement Workshop
Michelle Burack, MD
Gut-Brain Connections in Parkinson’s
Fahed Saada, MD, Neurologist
Psychological Issues with Parkinson’s Disease

There is no cost for the conference and lunch but registration is required as space is limited. To register, please call Upstate Connect at 315-464-8668.

The deadline for registration is Friday, October 5, 2018.

Please feel free to print, post and distribute the attached flyer.

Thank you.

Ellen M. McCauley
Public Information Specialist

Onondaga County
Department of Adult & Long Term Care Services

(Aging, Mental Health, NY Connects, Protective Services, Veterans)
421 Montgomery Street, 10th Floor

Syracuse, NY 13202

Phone: (315) 435-2362 Ext. 4942; Fax: (315) 435-3129


Website:; Department

June 4, 2019 Kyoto Japan – World Parkinson’s Congress

The World Parkinson’s Congress is held every three years. The last one was in 2016 in Portland Oregon The next one in Japan.

There has been strong interest in our support group in attending the next World Parkinson’s Congress in Kyoto, Japan.

Letter from Ian Wing

I should emphasize that I am happy to play a coordinating and advisory role but cannot be a travel agent or “guide” in the traditional sense. Attendees will need to make their own travel and accommodation arrangements. I will be happy to make suggestions and, depending on the level of interest, organize some sight seeing in Tokyo prior to the Congress.


This is held every three years and brings together doctors, researchers, clinicians, people living with PD, caregivers and others. Participants are from all over the world and there is a great deal of interaction between participants. There were more than 4000 participants in Portland.

Sharon and I have attended the past two congresses in Montreal and Portland, OR and a stand out feature was the vigorous debate between medical professionals and also between people living with PD, their caregivers and clinicians. In the summing up session in Portland, several medical professionals said that the Congress was unique in that they received much valuable feedback – and push back – from people living with PD. As it is a world congress, participants are able to share knowledge and experience from many countries.

The web site is up and contains a lot of general information.

According to the organisers, attendance is going to be limited and registration will open on September 10. The cost is $300 for people with PD and also for caregivers. The cost increases to $350 after Feb 28 2019.


The organisers make arrangements with specific hotels near the venue and represent the full range from high end to moderate. In both Montreal and Portland the moderately priced accommodation booked out very quickly. The website is suggesting $150/night as the average for Kyoto.

There are other options such as Airbnb and “business hotels”  – but you need to keep in mind that Japan is a very densely populated country and space is always at a premium. The cheaper end will have very small rooms and bathrooms. Also, Kyoto is a hilly city and roads are very narrow with narrow sidewalks if at all.

For that reason and because trains and buses are often crowded and not designed for large pieces of luggage I cannot emphasise strongly enough that you need to minimize the amount of baggage you bring with you.


Expedia is showing economy fares from JFK and Boston to Tokyo (Narita (90km from central Tokyo) – or Haneda (20km)  ranging from about $850 on Chinese airlines via Beijing or Shanghai to nearly $2000 on US or Japan Airlines.

The nearest international airport to Kyoto is Osaka – Kansai International (KIX). Flights are more expensive than to Tokyo – particularly n US airlines.

Japan Airlines is offering a fare of $2600 JFK – Tokyo in their premium economy cabin – which I have found to be very good. Some people have also expressed interest in travelling to Australia after the congress and the fare JFK – Tokyo – Sydney return is $2700 in premium economy.

I have found the expedia “bundled” deals of travel and accommodation to be very good value in Japan – but again, you get what you pay for – rooms at the APA chain of hotels contain a double bed and approximately one foot of space around it – about 9 sq ft at the entrance and a bathroom about 12 sq feet. The very confined space can be challenge to those of us who have balance or movement issues.


While Kyoto is a fascinating city and, as the capital of Japan from 794 AD until 1868, contains a great deal of history, first time visitors should definitely spend a few days in Tokyo, one of the world’s great cities. Sharon and I lived there for 8 years and are familiar with its layout and points of interest. It has an extensive and extremely efficient subway system but does involve a lot of walking and stairs – and must be avoided in rush hour (the Japanese have an expression – “sushizume” – which means jammed into the train like grains of sushi rice in a mold. )

Taxis are plentiful but are expensive and very few drivers speak English.

I am looking into hiring a mini bus and driver which we could use to do our own tour. Cost is about Yen90000 – $800 – or $50 per person for a 16 seater.

If participants would like to spend say 3 days in Tokyo – I suggest we plan on arriving in Tokyo on May 31 – leaving the USA on 29/30 May.

The conference begins on Tues June 4 in the afternoon and we could depart for Kyoto on the Shinkansen (Bullet train –  200 mph) on Tues morning – travel time is 2 hours 15 mins. Cost is about $200 one way for a reserved seat (recommended)


Organisers at past congresses have arranged group tours to places of interest and I expect the Japanese organisers will also do this. Apart from the Imperial Palace, there are a number of famous temples and shrines in Kyoto – Kinkakuji (Golden pavilion) and Ryoan-ji (famous rock garden) – and many others. Kyoto was not damaged in WW2 and so the older parts of Kyoto date back many centuries. This includes the Gion district, home to geisha traditions. The city of Nara is nearby and was the capital prior to Kyoto.

Osaka was totally destroyed during WW2 and so does not feature much on the tourist trail.

Please monitor the web site and let me know if you have questions or need advice on making arrangements.

Commencing in November I propose that people intending to go to Kyoto meet for ½ hour prior to the regular meeting so we can continue the planning.

I’m looking forward to having a capital district group in Kyoto!

Ian Wing