Paperback – August 28, 2013 by Peggy Van Hulsteyn
Yoga and Parkinson’s Disease is a practical how to guide to using yoga to manage stress, improve mental alertness, increase flexibility, correct posture and improve the quality-of-life of readers with Parkinson’s. It follows the author’s own experience and research studies in the subject that have shown a correlation between yoga practice and better health and outcomes after a Parkinson’s Disease diagnosis. More than simply an exercise guide, the book is a deeply soothing form of moving meditation and physical activity that is a safe way to rebuild strength, stamina, and flexibility.
Yoga and Parkinson’s Disease shows how yoga ameliorates difficulties that accompany Parkinson’s, including mobility, range of motion, balance, and guides towards leading a healthier life.
If we want to reach a goal, we may need to develop or change habits. This book will help us understand how to do that.
A young woman walks into a laboratory. Over the past two years, she has transformed almost every aspect of her life. She has quit smoking, run a marathon, and been promoted at work. The patterns inside her brain, neurologists discover, have fundamentally changed.
Parkinson’s disease directly affects as many as one million Americans, according to the Parkinson’s Disease Foundation. When you consider their families, friends, and colleagues, the number of people truly touched by this disease is remarkable.
Whether you’re facing a Parkinson’s diagnosis or supporting someone living with the disease, education and community are key. Understanding the disease and what people living with Parkinson’s go through is a crucial first step in lending useful support. The following list of books is a perfect resource for those directly affected by the disease or even just those curious about it.
There are a ton of great, FREE Parkinson’s print materials available – you just have to know where to look! This is by no means a complete list however these items are particularly useful.
Davis Phinney Foundation Every Victory Counts book
- Visit https://www.davisphinneyfoundation.org/resources/every-victory-counts-2017/
- Click “Yes! I want to download my copy now.”
- Fill in the order form with your information. If you do not want to receive emails from the DPF, make sure to check that box.
- Click submit and your download will be available.
- Need assistance or don’t have internet access? Email Alex Reinhardt at email@example.com or call 866-358-0285.
Parkinson’s Foundation “Aware in Care” kit, Caring and Coping guide, other handbooks
- Visit www.parkinson.org
- Click the “Ways to Give” tab at the top of the page
- Click “Shop” (everything is free)
- Select the item(s) you want to receive
- For booklets, you have the option of downloading as a PDF
- Click Add to Cart
- When you’re done shopping, click “Checkout”
- Fill in the required information. If you do not want to receive emails from the PF, make sure to uncheck that box.
- Need assistance or don’t have internet access? Call 800-473-4636 to order.
- Visit https://www.apdaparkinson.org/resources-support/download-publications/
- To download DIGITAL versions, select the booklet(s) or supplement(s) that you want to download.
- To order PRINT copies, click the link near the top of the page that says, “You can also order print publications directly from us using this form.”
- Fill in the required information.
- Once you do that, available publications will be displayed.
- Need assistance or don’t have internet access? Call 718-981-8001 x115 or email ECiorciari@apdaparkinson.org to order.
online education, I would suggest the sources below. Please note that the webinars are archived on these sites so you do not have to view the webinar during it’s “live” broadcast.
If you have Parkinson’s disease or care for someone who does, you need information. And you might just find answers in the PD Library. The free online resource — maintained by the Parkinson’s Foundation — is a gold mine for anyone with an interest in the disease
A practical step-by-step, room-by-room guide to simple modifications that can help seniors make their homes safer and easier to navigate, this reference offers readers clear and practical solutions.
Vanity Fair columnist Michael Kinsley escorts his fellow Boomers through the door marked “Exit.”
The notorious baby boomers—the largest age cohort in history—are approaching the end and starting to plan their final moves in the game of life. Now they are asking: What was that all about? Was it about acquiring things or changing the world? Was it about keeping all your marbles? Or is the only thing that counts after you’re gone the reputation you leave behind?
In this series of essays, Michael Kinsley uses his own battle with Parkinson’s disease to unearth answers to questions we are all at some time forced to confront. “Sometimes,” he writes, “I feel like a scout from my generation, sent out ahead to experience in my fifties what even the healthiest Boomers are going to experience in their sixties, seventies, or eighties.”
This surprisingly cheerful book is at once a fresh assessment of a generation and a frequently funny account of one man’s journey toward the finish line. “The least misfortune can do to make up for itself is to be interesting,” he writes. “Parkinson’s disease has fulfilled that obligation.”
I love these hand-drawn illustrations of what Santiago Ramon y Canal saw when looking at brain tissue through a microscope.
John Grisham says THE TUMOR is the most important book he has ever written. In this short book, he provides readers with a fictional account of how a real, new medical technology could revolutionize the future of medicine by curing with sound.
THE TUMOR follows the present day experience of the fictional patient Paul, an otherwise healthy 35-year-old father who is diagnosed with a malignant brain tumor. Grisham takes readers through a detailed account of Paul’s treatment and his family’s experience that doesn’t end as we would hope. Grisham then explores an alternate future, where Paul is diagnosed with the same brain tumor at the same age, but in the year 2025, when a treatment called focused ultrasound is able to extend his life expectancy.
Focused ultrasound has the potential to treat not just brain tumors, but many other disorders, including Parkinson’s, Alzheimer’s, hypertension, and prostate, breast and pancreatic cancer.
For more information or to order a free hard copy of the book, you can visit The Focused Ultrasound Foundation’s website. Here you will find a video of Grisham on the TEDx stage with the Foundation’s chairman and a Parkinson’s patient who brings the audience to its feet sharing her incredible story of a focused ultrasound “miracle.”
Readers will get a taste of the narrative they expect from Grisham, but this short book will also educate and inspire people to be hopeful about the future of medical innovation.
Internationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as, “the voice of the Parkinson’s disease patient.” He has an international following on the National Parkinson Foundation’s Ask the Doctor web-forum. His many books and internet blog posts are brimming with up-to date and extremely practical information. He has a talent for infusing his readers with positivity and optimism. In his current book, he unmasks the important secrets applicable to every Parkinson’s disease patient. For some sufferers the secrets have translated into walking again, for others they have restored voices, and for many they have resulted in the lifting of a d
An essential addition to your wellness toolkit. Dealing and Healing offers a fresh and exciting new tool for any individual or group seeking an holistic approach to their own wellbeing. Angela and Karl Robb, the team that developed the Parkinson’s Disease best selling book, A Soft Voice in a Noisy World, have created an easy to use workbook to enhance personal wellness. Dealing and Healing is a new workbook that explores living well with a health condition from a body, mind, and spirit level. Filled with exercises designed to expand self-awareness, refresh the body, calm the mind, and bring peace to the spirit. Now, having lived with Parkinson’s for at least thirty-three years,
Being diagnosed with Parkinson’s disease can be distressing, and adjusting to the effects of the disease can be difficult. The second edition of Parkinson’s Disease: 300 Tips for Making Life Easier will help readers lead a remarkably unlimited life. Filled with tips, techniques, and shortcuts readers will learn basic lessons for conserving time and energy, enabling them to do more of the things they want to do. Throughout the book, specially marked tips are provided for those who provide care and support for people with this disease. By adapting their routine,
A new section of the website is being developed. The Book section will list books that people have found helpful. You can see the books so far here or by clicking the “Books” post category on the right or the “Books” menu item at the top of the page.
Do you have a favorite book abut Parkinson’s? Let us know about it by filling out this form
by Alex Kerten and David Brinn
Parkinson’s Disease, a disorder of the central nervous system, affects 1 million people in America and 10 million worldwide. In Goodbye Parkinson’s, Hello Life! Alex Kerten presents his breakthrough holistic technique that combines dance therapy, behavior modification, and martial arts, to prove that there is life beyond the diagnosis of PD. Goodbye Parkinson’s, Hello life! received “Recommended Reading” status by the Michael J. Fox Foundation and listings on the National Parkinson’s Association social media sites.
Essential Information and Inspiration for a Lifetime of Wellness
Unique in the world of Parkinson’s resources, the Every Victory Counts® manual gives people living with Parkinson’s – and their caregivers and family members – the tools they need to take control of their own Parkinson’s treatment through a proactive approach to self-care.
Click to read and/or download the book as a PDF file (5mb, 275 page printable book)
or get your free printed or digital edition from the Davis Finney Foundatiion
This book is an easy to read account of how I maintain a positive outlook despite dealing with Parkinson’s Disease over the past 19 years. I am hoping it helps others with Parkinson’s or some other debilitating disease. If nothing else I hope that those who read it get a few laughs. I think people will find this book enjoyable and finish it with a smile on their face, whether they have Parkinson’s or not. I am not a rich or famous person with financial resources to try any treatment I want. I am just a regular guy with an irregular disease. Despite the negative impact this disease has on me, I do my best to find and focus on the positives in my life. This book explains that and provides background information on how I got to where I am today. You can contact me via e-mail at firstname.lastname@example.org
Jul 2, 2015 by Maria De Leon MD
Parkinson’s disease affects all sides of you: your inside, your outside, and your “right” side—that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you’re not feeling very sharp at all?
Parkinson’s Diva is a personal and professional accounting of a young Parkinson’s doctor’s experience with the disease in all realms of her life . . . from doctor, caregiver, and ultimately as a young Parkinson’s patient herself.
Not only does Dr. Maria De León cover important basics of PD and research-based data, she also shares the personal concerns and gender-specific battles that young women who live with the disease must face. She encourages all of us to be empowered through education, self-awareness, and faith. This book is about embracing your own style and grace in your journey with PD . . . as Maria says “summoning your inner diva.”
WORDS OF PRAISE FOR PARKINSON’S DIVA
“Dr. De León, a neurologist and Parkinson’s patient herself, writes with great sensitivity and deep personal insight about issues of critical interest to all women with PD. She blazes the trail toward a better understanding of gender differences and makes an important contribution to the literature on Parkinson’s disease.”
– Diane G. Cook, Patient Representative Consultant, FDA; People with Parkinson’s Advisory Council, Parkinson’s Disease Foundation.
“Dr. De León writes with intelligence, compassion, unflinching honesty and practicality, but most importantly with positivity and faith. Parkinson’s Diva is an informative and insightful book for women on how to live and live well with Parkinson’s disease.”
– Mya C. Schiess, MD; Professor of Neurology; Director UT MOVE
Everybody Has a Window and Aisle Seat: Choosing a Positive Approach to Parkinson’s Disease
by Mary Huston McLendon
Diagnosed with Parkinson’s disease almost two decades ago, Mary Huston relates how she confronted it in a straightforward manner, and refused to give up or play a passive role in her treatment and wellbeing. Her stories describing her long journey will have you laughing and crying at the same time.
by Jon Palfreman
A star science journalist with Parkinson’s reveals the inner workings of this perplexing disease
Seven million people worldwide suffer from Parkinson’s, and doctors, researchers, and patients continue to hunt for a cure. In Brain Storms, the award-winning journalist Jon Palfreman tells their story, a story that became his own when he was diagnosed with the debilitating illness.
My Degeneration: A Journey Through Parkinson’s (Graphic Medicine)
by Peter Dunlap-Shohl
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
David Zid, an ACE, APG certified trainer, has collaborated with orthopedic surgeon, Thomas H. Mallory, M.D., who is afflicted with Parkinson’s disease, and Jackie Russell, RN BSN CNOR, in the development of a Parkinson’s specific fitness program designed to proactively minimize tremors and improve flexibility, stability, balance and strength. This program empowers the person with Parkinson’s Disease to take control, helps with maintaining independence, and provides hope! Delay the Disease contains colorful photographs of Zid demonstrating each move, as well as recommendations for exercise frequency, modification and how to adjust the workout as one improves. Parkinson’s patients participating in Zid’s fitness program notice improvement in walking, dressing and maintaining balance. Exercises are divided into categories (wake up call, walking and balance, cardiovascular, strength, facial and vocal, and night-time stretching.
Written in plain, easy-to-understand language, this book teaches you everything you need to know to about Parkinson’s Disease, without you guessing or searching endlessly for answers to your biggest questions. This book is the result of 25 years experience and research in living a life with Parkinson’s Disease. It’s chock-full of vital facts, helpful hints and critical information… all in one easy to read book.
Here’s some of what you’re going to discover:
- Discover exactly what is Parkinson’s Disease. What causes it? How fast does it progress?
- How to get correctly diagnosed in determining whether it’s really Parkinson’s disease.
- Is Parkinson’s hereditary? Discover what the latest research shows about whether you should be concerned if your parent or close family ancestry had Parkinson’s.
- 22 of the most common symptoms of Parkinson’s Disease. Learn these symptoms so you won’t be fooled by other ‘look alikes’.
- What the latest research shows about the most effective ways to slow the progression of Parkinson’s.
- The 5 Stages of Parkinson’s and how to identify which stage you’re at now.
- How Parkinson’s can affect your life expectancy and whether people die from the disease. It’s a lot less scary than you think!
- Why attending a Parkinson’s support group meeting may NOT be the best move for someone who has just been diagnosed with the disease.
This book isn’t just for the newly diagnosed. Inside you’ll learn:
- What you should know about Essential Tremor and how it’s different from Parkinson’s Disease.
- The role that age plays in getting Parkinson’s and what you should know about Early Onset Parkinson’s.
- Why anxiety and depression are common in Parkinson’s patients and how to best alleviate these negative emotions.
- The relationship between Parkinson’s and Alzheimer’s Disease.
- The real cause of depression in Parkinson’s patients whether it’s caused by the disease or the side effects of the common medications.
- What you should know about stress and how this can negatively impact you. Learn 5 simple techniques you can use to alleviate stress and reduce these effects.
- What you should know about the common medications prescribed for Parkinson’s patients and the common side effects and long-term effects of the drugs.
- Drugs you should avoid while on Parkinson’s medication and those you should definitely tell your pharmacist about if you’re using them.
- 12 Ways to reduce nausea, a common side effect of many Parkinson’s Disease drugs.
You’ll find these tips too:
- 8 Techniques you can use in order to prevent “freezing”. You’ll learn a neat little trick discovered by accident that works very effectively.
- Learn how to know if you are getting the most out of your medicine. (How much “off” time is reasonable?)
- Common things you should avoid to help reduce your tremors.
- 11 Speech Therapy techniques you can use to improve your speech clarity.
- 18 Tips for making chewing and swallowing of food much easier (these will come in very handy!)
- 15 Tips for helping you to get a better night’s sleep.
- 7 Main alternative treatments for Parkinson’s Disease you should know exist.
- What you should know about the foods you should eat more of and those you should avoid like the plague.
- What you should know about getting financial help from your government and other agencies.
- Helpful gadgets for people with Parkinson’s.
- And much more…
The fundamental guide to the most effective treatments for Parkinson’s Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience.
In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson’s Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog’s goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson’s at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson’s medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy.
Although many commendable texts have been written on the subject of Parkinson’s Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson’s and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors.
The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson’s Disease.