Monthly Archives: April 2019


October 10, 2019 – meeting

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands. .

Our speaker will be Dr. Eric Molho

Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients. He is also uniquely skilled and experienced in botulinium injections for dystonia, providing patients with optimum results. Patients value his comprehensive and compassionate approach: “The best that I can offer is my time and expertise,” explains Dr. Molho. “These are complex cases and I feel it’s important to take the time to distinguish each individual patient’s needs, tolerance for medication and lifestyle in order to ensure the best treatment outcomes.”
Dr. Molho is a graduate of Albany Medical College where he currently serves as a professor of neurology and the Riley Family Chair in Parkinson’s Disease. At Albany Medical Center, he completed his residency in neurology and a fellowship in movement disorders with Dr. Stewart Factor. He has served as the co-director of the Tardive Dyskinesia Clinic and Huntington’s Disease Comprehensive Care Center, as well as the course director of the 2nd year clinical neurosciences course at Albany Medical College. As an active member of the American Academy of Neurology and Movement Disorders Society, Parkinson Study Group, Huntington Study Group and Dystonia Study Group, Dr. Molho is undoubtedly a leader in his field uncovering medical breakthroughs and providing exceptional patient care.


CARE Act wallet card

The Caregiver Advise, Record, Enable (CARE) Act helps family caregivers as their loved ones go into the hospital and as they transition home.

The CARE Act requires hospitals to:

  • Record the name of the family caregiver on the medical record of your loved one.
  • Inform the family caregivers when their  loved one is to be discharged.
  • Provide the family caregiver with education and instruction of the medical tasks he or she will need to perform for the patient at home.

The CARE Act has passed in NY State,

click here to download a CARE Act wallet card to place in your and your loved one’s wallets—next to your insurance cards. That way, you’ll both have important information about this new law available when you need it most

If you are a family caregiver, you’re not alone.

To find the tools and resources you need, go to the AARP Caregiver Resource Center.


Opportunity to participate in research study

Help us learn how to better diagnose Parkinson’s Disease at an earlier stage.

Overview

The purpose of this study is to help identify molecules in the saliva, called microRNAs, that can serve as biomarkers for Parkinson’s disease. These biomarkers may allow earlier diagnosis and treatment of this disease. A doctor will ask each participant to perform a brief series of neurological tests, in addition to cognitive and balance tests. A small amount of saliva will then be collected in order to measure microRNA.

We offer flexible scheduling.

See printable tri-fold brochure

Quadrant Biosciences works with top academic institutions, medical researchers and engineers to translate breakthrough findings into thoughtfully developed and scientifically sound assessment applications.

Help us learn how to better diagnose Parkinson’s Disease at an earlier stage. Each participant is paid $25.

Adults – recently diagnosed with Parkinson’s Disease – are eligible for the study, “Molecular and functional biomarkers of Parkinson’s Disease”

CLINICAL STUDY OF PARKINSON’S DISEASE THIS STUDY MIGHT BE FOR YOU IF:

◆ You have recently been diagnosed with Parkinson’s Disease

◆ You would like to help us learn how microRNA markers change in Parkinson’s Disease & improve our understanding of the disease.

A clinical study for adults with recently diagnosed Parkinson’s Disease. MOLECULAR AND FUNCTIONAL BIOMARKERS OF PARKINSON’S DISEASE

OVERVIEW The purpose of this study is to help identify molecules in the saliva, called microRNAs, that can serve as biomarkers for Parkinson’s disease. These biomarkers may allow earlier diagnosis and treatment of this disease. A doctor will ask each participant to perform a brief series of neurological tests, in addition to cognitive and balance tests. A small amount of saliva will then be collected in order to measure microRNA. We offer flexible scheduling.

GOAL OF THIS STUDY Currently, only a very small number of biological tests are available for early diagnosis of Parkinson’s Disease, and these are not informative for all types of the disease. By finding microRNA markers with higher levels in Parkinson’s patients, we may be able to diagnose this disease at an earlier stage and also improve our understanding of the disease. We hope that by discovering new markers and earlier diagnosis of Parkinson’s disease, the quality of life of patients can be improved.

DO YOU QUALIFY? We are looking for participants recently diagnosed with Parkinson’s Disease. As a small compensation for your participation, each participant will receive $25. We will also pay for parking. FOR MORE INFORMATION or to schedule your participation, form at:

If you qualify for the study, an information packet will be mailed to you prior to your study appointment.


PD SELF – a learning program designed to help people with Parkinson’s better manage their disease

PD SELF program starting in September 2019.

Please give us your contact information, by filling in the interest form below, to reserve a place in the program starting September 2019.

PD SELF – Parkinson’s Self-Efficacy Learning Forum – A national program, now being offered in Albany for the second time, that provides people with Parkinson’s an in-depth understanding of the disease and the tools to manage it with confidence.  There is no cost to attend.  Registration is required.  Space is limited.

This self-efficacy learning forum is specifically designed for those who have been diagnosed with Parkinson’s disease (PD) within the past three years and their care partners. We will learn about the disease and how to approach goals, tasks and challenges.

Sessions will be held starting Wednesday September 18, 2019.  There will be a total of eight monthly sessions. Each session will be from 4:00 – 7:00 on the third Wednesday of the month.  We will meet at the Terrace Community Room at Beverwyck in Slingerlands. – 41 Beverwyck Lane, Slingerlands, NY 12159. (directions)

Debra Virtanen and Jud Eson traveled to Denver in May 2018 to attend a training course to learn how to facilitate the PD SELF program.  Facilitation teams, including a person with a clinical background and a person with PD, came from 11 locations across the country to learn.  Team Albany included Debra, a physical therapist, and Jud, a person with Parkinson’s.  This program is distinct and separate from the Capital District Parkinson’s Support Group.

Many people are handed a diagnosis with very little guidance on what to do next. But the diagnosis is life changing. Facing life with a chronic progressive disease means facing changes to health, relationships, family life, employment and finances.

Research tells us that when people are given the resources to cope with these changes, they are empowered to take an active role in managing PD, leading to better health and quality of life.

Participants are provided with a PD SELF Curriculum Field Guide containing the course content for each of the eight modules.

  1. Adapting to Parkinson’s Disease
  2. Acquiring Self-Efficacy
  3. Creating your personal health care network
  4. Understanding PD medications and treatments including complementary and alternative medicine
  5. Benefiting from exercise and neuro-plasticity
  6. Understanding cognition and non-motor symptoms
  7. Strengthening the relationship between people with Parkinson’s and Care Partner
  8. Going forward

Over the eight modules, participants learn how to master their own relationship to Parkinson’s. The skills and behaviors learned include:

  • Setting and achieving goals
  • Self-monitoring
  • Keeping health care records
  • Communicating with your doctor
  • Establishing new routines
  • Overcoming obstacles
  • Problem solving
  • Reflection and journaling
  • Managing negative emotions
  • Realistic optimism
  • Resilience and tenacity
  • Self-Advocacy

For more information and to register, please visit the PD SELF website at PDSELF.org or send an email to PDSELF.Albany@gmail.com .

If you are interested  in registering, fill out an interest form

Spread the word with this flyer


Didier Thomas – 1928- 2019 | Obituary


Didier Octave Thomas was born in Paris, France on September 7, 1928, the youngest of nine children, and died in Schenectady on February 10, 2019. He was the son of the late Octave and Gabrielle Thomas. He studied architecture at l’Ecole des Beaux Arts in Paris, where he met Susan Felstiner of Mount Vernon, N.Y. during her junior year abroad. They were married in Mount Vernon on April 26, 1953, and lived in various places over the years in New York, New Jersey and Massachusetts. After two years service in the U.S. Army, Didier worked in architectural design, urban planning and historic preservation, culminating in ten years as associate director of planning at Harvard University. After retirement, he led a community organization that converted Boston’s landmark 19th century water pumping station into the Waterworks Museum. He is survived by his wife Susan; daughter Katherine Rosenblatt (Michael) of Slingerlands; son Daniel Thomas (Susanne) of Leiden, The Netherlands; and four grandchildren, Rachel, Julien, Joshua and Zachary. A private burial was held on Tuesday, February 12, 2019, in the Beth Emeth Cemetery. Shiva will be held on Sunday, February 17, from 6:30 – 8:30 p.m. at the home of Katherine and Michael Rosenblatt, 6 Fife Dr., Slingerlands. Donations in memory of Didier Thomas may be made to the Waterworks Museum waterworksmuseum.org To leave a condolence message for the family, please visit, levinememorialchapel.com


Lookin for people with PD for research study

A clinical study for adults with recently diagnosed Parkinson’s Disease. MOLECULAR AND FUNCTIONAL BIOMARKERS OF PARKINSON’S DISEASE

OVERVIEW The purpose of this study is to help identify molecules in the saliva, called microRNAs, that can serve as biomarkers for Parkinson’s disease. These biomarkers may allow earlier diagnosis and treatment of this disease. A doctor will ask each participant to perform a brief series of neurological tests, in addition to cognitive and balance tests. A small amount of saliva will then be collected in order to measure microRNA. We offer flexible scheduling.

GOAL OF THIS STUDY Currently, only a very small number of biological tests are available for early diagnosis of Parkinson’s Disease, and these are not informative for all types of the disease. By finding microRNA markers with higher levels in Parkinson’s patients, we may be able to diagnose this disease at an earlier stage and also improve our understanding of the disease. We hope that by discovering new markers and earlier diagnosis of Parkinson’s disease, the quality of life of patients can be improved. DO YOU QUALIFY? We are looking for participants recently diagnosed with Parkinson’s Disease. As a small compensation for your participation, each participant will receive $25. We will also pay for parking

FOR MORE INFORMATION or to schedule your participation, visit the study website and complete a contact form at: https://quadrantbiosciences.com/parkinsonsresearch/ If you qualify for the study, an information packet will be mailed to you prior to your study appointment.

Get printable tri-fold brochure about the study: