Monthly Archives: January 2019


‘We may not find a cure but we will be closer because of this’

Federal Health Minister Greg Hunt will announce $30 million in funding for the Parkinson’s Disease Mission, which combines clinical trials and genomics research led by the Garvan Institute of Medical Research.

Despite dedicated research since the 1960s, the causes of Parkinson’s are largely unknown and treatments only mask the symptoms. There is an urgent need to identify drugs that will slow or stop the disease, Mr Hunt said.

The mission’s first clinical trial will assign 300 patients to randomly receive existing drugs for diabetes, asthma, cardiovascular disease, a supplement or placebo.

Lead researcher, neurologist Professor Simon Lewis said the trials should give patients “realistic hope, not hype”. But the beauty of the Parkinson’s Disease Mission was that it will combine clinical trials and “really clever science”, Professor Lewis said.

Read more at Sydney Morning hearald



February 20, 2019 – Caregiver 12-Week Telephone Support Group

Senior Services of Albany will be conducting a Caregiver 12-Week Telephone Support Group! The group will meet weekly by phone on Wednesdays, 7 p.m. – 8 p.m. from February 20, 2019 to May 8, 2019. This program is supported by the Albany County Department of Aging, the New York State Department of Aging and the Administration for Community Living. The telephone support group provides busy caregivers with the opportunity to participate by phone from the comfort of their homes. The weekly classes will provide support and strategies to:

  • Reduce stress, strain and depression 
  • Solve problems more efficiently 
  • Learn about community resource.

See flyer for more information. Advance registration is required. Either the caregiver or care receiver must reside in Albany County. 

To register, please contact Beth Owen at Senior Services of Albany at (518) 694-3511.


Subjective Cognitive Decline Could Help Predict Parkinson’s Dementia, Study Contends

Increasing evidence suggests that subjective cognitive decline is associated with Alzheimer’s disease pathology and with an increased risk for future dementia development. However, the clinical value of subjective cognitive decline in Parkinson’s disease (PD-SCD) is unclear. The aim of the present work was to characterize PD-SCD and its progression to dementia.

Statistical analyses revealed that language domain and, especially memory domain are good predictors of dementia.

Conclusions

The present investigation is the first to conduct a long-term follow-up study of PD-SCD and its relationship with the development of dementia. The results provide relevant data about the characterization of SCD in PD patients and show that PD-SCD is a risk factor for progression to dementia

read more https://link.springer.com/article/10.1007/s00415-019-09197-0


April 11, 2019 – Meeting Notice

Join the CDPSG Support Group for the monthly meeting.

April 11, 2019 7:00 PM at Beverwyck

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Topic : Deb Riitano – Commissioner Albany County Department for Aging

Albany County Department for Aging (ACDFA) strives to maximize choice and self-direction for the people of Albany County as they age.

ACDFA’s mission is to connect adults age 60+ and their families/caregivers with community resources that promote independence, self-direction, dignity and improved quality of life.

We will hear about programs administered by the Department such as:

  • information & assistance
  • adult day care
  • in-home health services
  • caregiver support programs
  • volunteer opportunities
  • consumer and caregiver supports such as respite care, case/care management
  • facility based services such as adult day care programs and nursing homes
  • home based services such as home health or personal care services and personal emergency response systems
  • insurance/benefit information and counseling regarding long term care insurance, Medicare or Medicaid, Veteran’s and other benefitsprotective/preventative services for information about how to prevent or report situations of abuse, neglect, or exploitation of adults (over the age of 18)
  • residential housing options and supports such as adult residential care facilities, assisted living facilities, low income/subsidized housing and utility payment assistance programs
  • support groups and counseling for caregivers, children and adults with disabilities or aging/older adults
  • transportation related information such as automobile/van adaptations and programs to transport the disabled and/or senior citizens
  • information and assistance may also be available regarding such things as legal services, mental health and/or substance abuse programs, home modification programs and property tax exemptions

CDC Publication – What can you do to stay independent?

Do you or your loved ones have a plan to stay safe, mobile, and independent as you age? Many people make financial plans for retirement, but don’t consider how to plan for potential mobility changes. The mobility planning tool can guide you to take action today to help keep yourself—or your loved ones—safe, mobile, and independent tomorrow.

dowmload here

https://www.cdc.gov/motorvehiclesafety/pdf/older_adult_drivers/CDC-AdultMobilityTool-9.27.pdf


January 17, 2019 – Parkinson’s & Neurological Diseases Advocacy & Education Group


Join others who live with Parkinson’s and other neurological diseases as we share, learn from the experts, and live to the fullest.


Please join us on
Thursday, January 17, 2019 from 2-3 PM
at the
Mayfield Presbyterian Church
22 North Main Street, Mayfield, NY 12117

Guest speaker will be Jamie Marshall, from the Resource Center for Independent Living who will discuss Respite Care and other services provided by RCIL

For more information, contact Rev. Bonnie Orth at 518-661-6566


Book: Yoga and Parkinson’s Disease: A Journey to Health and Healing

Paperback – August 28, 2013 by Peggy Van Hulsteyn

Yoga and Parkinson’s Disease is a practical how to guide to using yoga to manage stress, improve mental alertness, increase flexibility, correct posture and improve the quality-of-life of readers with Parkinson’s. It follows the author’s own experience and research studies in the subject that have shown a correlation between yoga practice and better health and outcomes after a Parkinson’s Disease diagnosis. More than simply an exercise guide, the book is a deeply soothing form of moving meditation and physical activity that is a safe way to rebuild strength, stamina, and flexibility. 

Yoga and Parkinson’s Disease shows how yoga ameliorates difficulties that accompany Parkinson’s, including mobility, range of motion, balance, and guides towards leading a healthier life.


Meditation, mindfulness, relaxation techniques

Navy SEAL calming technique

This calming technique is called box breathing, and you can try it yourself. It will only take you 16 seconds to cycle through the method one time. Just repeat the cycle as long as it takes you to feel relaxed. Breathe in for four seconds. Make sure all the air has been expelled from your lungs before you start to inhale. Once you start sucking up your air, make sure to really fill those lungs. Hold your breath for four seconds. No more inhaling at this point, and don’t let any air escape yet. Exhale for four seconds. Let the air out of your lungs at an even rate for the whole stretch of time, and make sure to get it all out. Hold your lungs empty for four seconds. It may be tempting to suck in some more air immediately after letting it all out, but just hang on for four.

https://medium.freecodecamp.org/a-navy-seal-breathing-technique-you-can-use-to-keep-calm-when-coding-f05a66da8067
Basic Meditation techniques

http://bemindful.org/basicinstru.htm
Guided meditations

https://www.uclahealth.org/marc/body.cfm?id=22&iirf_redirect=1
Easy relaxation techniques

https://www.innerhealthstudio.com/
Relaxation Downloads

https://students.dartmouth.edu/wellness-center/wellness-mindfulness/relaxation-downloads

Techniques for managing stress

https://www.parkinson.org/pd-library/fact-sheets/techniques-managing-stress

Visualization and Guided ImageryGuided imagery and visualization are techniques used to help you imagine yourself being in a particular state. Recordings are designed to help you visualize yourself relaxing or engaging in positive changes or actions. These exercises can help you reduce anxiety, improve self-confidence, or cope more effectively with difficult situations. https://www.uhcl.edu/counseling-services/resources/visualization
“Meditation made easy”

https://www.headspace.com/

Many of the resources found on p. 141 – 143 in the student handbook can be found at https://www.parkinson.org/pd-library