Monthly Archives: July 2018


Onondaga County Jamesville Support Group

Onondaga County Jamesville Support Group

Monthly, 3 rd Thursday 2:00 PM – 3:30
The Nottingham
1301 Nottingham Road
Jamesville, NY 13078
Contact: Cynthia Stevenson (315) 435-2362 ext 4993
cstevenson@ongov.net


Game-changer for Parkinson’s disease outcomes

A unique gaming system called ‘OrbIT’ will play a lead role in the fight to improve life for individuals living with Parkinson’s disease, thanks to funding from the Estate of the late Olga Mabel Woolger.

In a three-year $90,000 study, Flinders University Rehabilitation Engineer, Mr David Hobbs and University of Adelaide neuroscientist Dr. Lyndsey Collins-Praino will partner with Parkinson’s South Australia to trial OrbIT as a cognitive training device to improve outcomes and delay dementia onset for people with Parkinson’s .

The OrbIT gaming system is an accessible, fun, stand-alone computer gaming system that features a novel and easy to use controller.

read more https://medicalxpress.com/news/2018-07-game-changer-parkinson-disease-outcomes.html


Robert Foster – 1945 – 2018

Robert G. Foster 73 of East Greenbush died Tuesday, July 10, 2018 at St Peter’s Hospice. Robert was born in Schaghticoke to the late Lillian (Seymour) and Durwood Foster. He was a Navy and Vietnam Veteran. He worked as a mechanical technician and later as a regional technical manager for various companies thoughout his career. Bob’s hobbies were hiking, biking, and camping. He loved being with family and friends and found joy in simple moments, while enjoying their company. He loved life and did not let his Parkinson’s of 14 years determine how he lived. He saw great possibilities everywhere.

Bob will be forever remembered by his beloved wife of 44 years Sandy, two children, Stephanie Foster-Breunig of Castleton and Joshua Foster of Albany, son-in-law Mike Breunig, granddaughters Isabella and Sophia Breunig. Brothers Eugene Foster of Johnsonville, and Donald Foster of Schaghticoke. Sisters Donna Brock of Babcock Lake and Linda Vogt of Schaghticoke.

Our Bob will be missed tremendously.

Relatives and friends may call Saturday July 21, 2018 from 9:00 am – 10:30 followed by a Memorial Service at 10:30 am from the Wm. J. Rockefeller Funeral Home, Inc., 165 Columbia Turnpike. Memorial donations in memory of Bob may be made to the Parkinson’s foundation, Hope Soars, 1410 Maple Hill Rd. Castleton, NY 12033.

https://wjrockefeller.com/tribute/details/1039/Robert-Foster/obituary.html#tribute-start


Free to a good home

Free to a good home:

A special Bruno Valet Plus car seat that came from a 2014 Chrysler Town and Country van

https://www.bruno.com/products-buckets/2473/valet-plus-(1)

 

and

Pride scooter/wheelchair lift that was also on the van. It goes into a tow bar on the vehicle.

https://www.pridemobility.com/c/pride-lifts-and-ramps

 

The owner would love someone who needs them to have them since they are dreadfully expensive when new.

Contact owner by calling Johnine (Jonnie) Simpson 518-527-9155.


November 8, 2018 meeting notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic :

LSVT BIG and Physical Therapy​​

Speaker:

Sarah Gutenmann, PT, DPT, LSVT BIG
Dr. Gutenmann graduated from Clarkson University with a doctoral degree in physical therapy. Dr. Gutenmann also holds an associates degree in nursing from SUNY Canton, and a BS from SUNY Potsdam.

Dr. Gutenmann holds a specialization certification in LSVT BIG, which is a specialized training program designed to train rehabilitation therapists in an evidence-based treatment approach for individuals with Parkinson disease and other neurological disorders. Sarah is also very interested in women’s health and pelvic physical therapy.


October 11, 2018 meeting notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York. (Directions)

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Topic : Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders.


September 13, 2018 meeting notice

Join us for our monthly meeting.
Date: September 13, 2018 – Thursday 7:00 at Beverwyk.
Topic: Deep Brain Stimulation (DBS) – Christopher Henessay representing Abbott Infinity DBS

THIS MONTH ONLY – WE WILL MEET in a different building at Beverwyck. We will meet in the Van Cortland Room, 40 Autumn Drive, (Directions)

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information


August 10, 2018 – Davis Phinney Victory Summit on-line event

THE VICTORY SUMMIT® EVENT LIVE BROADCAST

For the first time ever, the Davis Phinney Foundation will broadcast The Victory Summit®  event worldwide. The event, which will also be attended in person by several hundred people, will be filmed at the Pasadena Convention Center and streamed, free of charge, to anyone worldwide with access to a computer and internet. We’ve taken on this initiative as a way to allow more people living with Parkinson’s, care partners and care providers to take part in this valuable day of information on living well with Parkinson’s.

  • WHEN

    Friday August 10, 2018 1:00 pm to 7:30 pm


  • WHERE

    Worldwide (broadcast from Los Angeles, CA)

read more


How to travel (with greater ease) with Parkinson’s

For the average person, traveling is a minor frustration. Security lines, delays, crowded airports and cramped and long lines at snack shops and restaurants are par for the course. However, if you’re living with Parkinson’s, those things aren’t just frustrations, they can be so troublesome and aggravating to deal with that you choose to stay at home.

Read more from the Davis Phinney Foundation

How to Travel (with greater ease) with Parkinson’s


Experimental drug stops Parkinson’s disease progression and symptoms in mice

Drug similar to FDA-approved diabetes treatments shown to prevent motor impairment, extend the lives of mice with Parkinson’s

Johns Hopkins researchers say they have developed an experimental drug similar to compounds used to treat diabetes that slows the progression of Parkinson’s disease and its symptoms in mice.

In experiments performed with cultures of human brain cells and live mouse models, they report the drug, called NLY01, blocked the degradation of brain cells that is the hallmark of Parkinson’s disease. The drug is expected to move to clinical trials this year.

Read more