Monthly Archives: February 2018

March 17, 2018 – Mid-Hudson/Albany Parkinson’s Symposium

Mid-Hudson/Albany Parkinson’s Symposium

March 17 ,2018

Kaatsbaan International Dance Center
120 Broadway Tivoli, NY 12583

10:00 – 10:15 Registration, Welcome

10:15 – 11:00 “Everything You Need to Know about PD Meds”
Fabio Danisi, MD * Neurologist, Movement Disorder Specialist, Mid Hudson Regional Hospital

  • Standard treatments, timing, dosage
  • Drug-induced hallucinations etc.
  • New medications (Nuplazid, etc.)
  • Drug interactions with over the counter preparations
  • Holistic ltems
  • PDF Materials -Medication log

11:00- 11:15 – Break

11:15 -12:00 – Non-Drug PD Treatments”
Vishad Sukul, MD – Neurosurgeon
Albany Medical Group

  • Surgical Parkinson’s Options
  • Deep Brian Stimulation -Multiple options
  • Focused Ultrasound
  • Future of Parkinson Surgery
  • Duopa

2:00 – 2:45 – Light Lunch

2:45 – 1:15 – “Move lt or Lose lt!”
Anne Olin; Board Certified Dance/Movement therapist,
NYS Creative Arts Therapist

1:15 – 2:00 – Panel Discussion – Open Forum
Fabio Danisi, MD – MidHudson Regional Hospital
Vishul Dukul, MD -Albany Medical Center
Jennifer Durphy, MD – Albany Medical Center
Julie Pilitsis, MD, PhD- Surgeon, Albany Medical Group

Please RSVP to Michael Hahn


From the New York State Thruway, Kingston and Points West

From N.Y.S. Thruway (Interstate 87) take Exit 19 (Kingston). Take Route 209 north over Kingston Rhinecliff Bridge. Route 209 ends at the center of the bridge and becomes Route 199. Continue over the bridge to the second traffic light which is junction with Route 9G. Turn left (North) on Route 9G/Route 199 towards Hudson / Germantown and continue North on Route 9G for 6 miles to County Route 78. Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From the Taconic State Parkway

Exit Taconic State Parkway at Route 199 Pine Plains/Red Hook. Turn West toward Red Hook on Route 199. Continue on Route 199 through the village of Red Hook to the junction with Route 9G. Turn right (North) on Route 9G, continue 4 miles to County Route 78. Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From Rhinebeck and Points South

Take Route 9 North to Route 9G. Turn left (Northwest) on Route 9G. Continue for 7.4 miles to County Route 78 Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From Hudson and Points North

Take Route 9G South to County Route 78. Turn right (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

Arriving at Kaatsbaan

Studio Theatre Building: Turn left onto Kaatsbaan Road (120 Broadway). Follow into the property and turn right after the first barn. Take the next right into the parking lot. Walk left past the arena (metal roof) and right around the “Music Barn”. The Studio Theatre building will be directly front.

Dancer’s Inn: Take the entrance road into the property and go past the first barn (right side of road). Continue straight ahead at the fork down to the Dancers Inn, located on the left just before the road loops back to the right. Turn left into the entrance and parking area.

How to Sleep Better With Parkinson’s advice from

Sleep is essential for everyone’s overall health and well-being. Unfortunately, problems with sleep and alertness are common in Parkinson’s disease (PD). It is likely that at some point, you will experience poor sleep and/or impaired daytime alertness related to your PD — maybe you already have.

The Parkinson’s Foundation has tools and information you can start using right now to get some quality sleep:


Our newest book, Sleep: A Mind Guide to Parkinson’s, is your practical guide for achieving good sleep health. This book addresses all aspects of sleep: healthy sleep, sleep changes due to aging and sleep problems due to Parkinson’s. Don’t miss the tips and personal stories from others in the Parkinson’s community.

Read Now


What type of bed is ideal for someone with PD? Find out the answer to this question and more in our video Rest and Sleep. Learn how both you and your bed partner can get better sleep and how to create a restful environment. Caregivers, watch Part 2 for guidance on how to help your loved one safely get in and out of bed.

Watch Now


In our Expert Briefings webinar, Aleksandar Videnovic, MD, from Massachusetts General Hospital/Harvard Medical School discusses the most common sleep issues related to PD. Dr. Videnovic addresses sleep fragmentation, restless legs syndrome, REM sleep behavior disorder and excessive daytime sleepiness.

Learn Now


Have more sleep or PD-related questions?
Call our Helpline at 1-800-4PD-INFO (473-4636) to speak to one of our Parkinson’s information specialists or email


June 14, 2018 – meeting notice

Join the CDPSG Support Group for the monthly meeting.
Thursday June 14, 2018 at 7 PM at the Terrace Community Room at Beverwyck (our “regular” location)
 Beverwyck Lane, Slingerlands, NY 12159 (Directions)

People with Parkinson’s, friends, and care partners are welcome to attend to learn more about Parkinson’s disease or obtain information.

TopicChrissy Stack will talk about, and maybe do some of, MedRhythms music therapy.
Refreshments: Helen H.

MedRhythms is new to the area, they specialize in neurological music therapy for neurological injury and disease, and are also looking to spread the word that these services are now available in the area.

July 21, 2018 – Saturday – summer picnic at Crossings Park in Colonie.

Join the Capital District Parkinson’s Support Group for our Summer Picnic.

Date: Saturday, July 21
Time: 12 noon until 3:00 pm
Place: The Crossings Park, Colonie
RSVP requested by July 14th

There will be no “regular” Thursday meeting in July.There is no charge to enter the park and there will be no charge for the picnic. The facility has ample parking nearby and  a covered,,wheelchair accessible, pavilion with picnic tables There are wheelchair accessible bathrooms on level ground a short distance from the parking lot and pavilion. Friends, relatives, children, grandchildren and leashed dogs are also welcome.

We will provide hamburgers, sausages, hot dogs and a vegetarian option that will be grilled for you. Buns, condiments and water will be provided but please also bring your own preferred cold drinks.

We are asking attendees to bring appetizers, salads or desserts to share.

Bring the following to share with 4 – 5 people:

If your last name begins with …
A – D bring Appetizers– e.g. dips, crudités, chips
E – L bring Potato or other starch based salad
L – P bring Green salads e.g. coleslaw, Greek salad, tomato & onion etc.
Q – Z bring Desserts e.g. fruit, cookies, cake etc.

A number of fun activities are also being planned.

Reserve your seat at the picnic no later than July 14th with  this online form

or send an email to with your name, number of people attending and what you will bring.

You can order a custom-made t-shirt to wear at the picnic for $15.  Quantities are limited.  Reserve yours here.


GPS to the entry to the Crossings Park on Albany Shaker Road:

580 Albany Shaker Road, Loudonville, NY 12211


Directions to the picnic:
Starting from the corner of Wolf Road and Albany Shaker Road (exit 4 on Northway)​
Go east on Albany Shaker (towards Albany).

In .5 mile take first exit of traffic circle to stay on Albany Shaker

In .4 mile turn right into the Crossings Park

Follow park road for .6 mile to end of road at parking circle.

You can see pavilion from there.
For more information about our group and about Parkinson’s visit our website at

April 14, 2018 – Parkinson’s Awareness Day – Manchester, VT

Parkinson’s Awareness Day 2018
Directions to Taconic Hotel

Date Saturday, April 14, 2018

Time 9:00am to 4:00pm


Taconic Hotel
3835 Main Street
Manchester Village VT 05254

Living with Parkinson’s: Faith in the Future

Click here for the full brochure and program


$20 per person and/or donation to the Chapter; includes breakfast and lunch.

If this cost presents a hardship for you, scholarships are available. Please call 802-847-3366 to register.

Hotel Rooms

Group rates are available at the following hotels. Please contact the hotels directly to make reservations, and mention the appropriate booking code or that you are attending Parkinson’s Awareness Day.

Kimpton Taconic Hotel, $129 per night, 844-861-5510, reservation code BPD – Must book by March 24

Hampton Inn & Suites Manchester, $129 per night, 802-362-4000, reservation code PVT – Must book by March 13

The Aspen at Manchester, $90-125 per night, 802-362-2450, 10% discount on a 2-night stay

For a complete list of lodging options in the Manchester area, click here.

Talent Display

Do you have a craft, skill or artistic talent that helps enrich your life? You are invited to share it with your peers at Awareness Day.

Bring your paintings, drawings, cards, knitting, quilting, woodwork, music, photography, or collections, and we will provide a place for you to exhibit your talent!

Space is limited, so please fill in the appropriate information below if you plan to participate or call 802-847-3366.

Registration ends on April 01, 2018

February 27, 2018 – 1 to 2 PM on-line seminar – Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia 

Join our upcoming seminars live or view recordings on our website afterwards to learn the many ways to live well with Parkinson’s disease (PD) from experts.

Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia 
Tuesday, Feb. 27, 2018, 1 to 2 p.m. ET
Christopher G. Goetz, M.D., Professor of Neurological Sciences, Professor of Pharmacology at Rush University Medical Center a Parkinson’s Foundation Center of Excellence

As part of chronic Parkinson’s disease and its treatment, psychotic behaviors occur in over 50% of patients.  These problems include illusions (perceptual errors), hallucinations (false perceptions), delusional thinking and even suspiciousness and paranoid behaviors.  In most instances, hallucinations are visual, but they can involve the auditory, tactile, olfactory, and gustatory (taste) systems as well.  Because such experiences tend to be repetitive (the same little black dog runs across the room), the patient often has insight and recognizes the hallucination as a false perception.  However, the situation can become more problematic with rigid insistence that the images are real and even threatening.  Psychotic behaviors are a high risk for nursing home placement, because families find them difficult to manage, especially if agitation and paranoid accusations are lodged against the caregiver.  Even though hallucinations usually start out as minimal intrusions, the spectrum of psychotic behaviors is progressive, and early recognition by patient, family and physician allows for detection and treatment interventions.  Life style changes, medication adjustments, and new specifically anti-psychotic treatments are available.

At the end of this presentation, participants will:

  • Understand the types of problems experienced by patients who develop the syndrome of Parkinson’s Disease Psychosis
  • Recognize the burdens and impact on quality of life to both patients and caregivers when Parkinson’s Disease Psychosis develops
  • List current treatments and strategies for mitigating and eliminating Parkinson’s Disease Psychosis.

April 28, 2018 – Parkinson’s Unity Walk

Chris Savastio is soliciting funding for the upcoming Parkinson’s Unity Walk in New York City’s Central Park. The walk will be held on Saturday, April 28. All funds received go directly to Parkinson’s Disease research.

To donate, go online to the official web site for the Parkinson’s Unity Walk. The team name this year is schott’sboxingalbany. Either one of those 2 options will do OR

write a check to Parkinson’s Unity Walk and write in either my name or the team name(Schott’s Boxing Albany) on the memo line of the check. Then mail it to;

Parkinson’s Unity Walk

PO Box 275

Kingston, NJ 08528

Also, there is an open invitation to all members of both support groups to either join us on the walk or become part of the fund raising team or both. Thank you!!

Think Spring,


April 14, 2018 – Tools for caregivers conference

The Capital Region Caregiver Coalition is proud to announce the 11th annual

“Tools for Caregivers”

~ Resources You Can Use When a Senior Relies on You ~

Workshops, Continental Breakfast, Caregiver Healing Touch and Vendor Resource Fair

DATE: April 14, 2018

Time: 8am – 12 noon

LOCATION: Beltrone Living Center (directions)

6 Winners Circle, Albany NY 12205


To register, contact, (518) 248-3807

7 marathons, 7 days, 7 continents and one man with Parkinson’s.

During the first marathon, Bret Parker felt great — for the first 15 miles of ice and snow.

“I was chugging along, and I had no symptoms,” he recalled the next day. “I was running a good pace. I said, ‘You got this.’ ”

He paused. “And that was the kiss of death. I started slowing down.

Read more

March 18, 2018 – Abstract Acrylic Pour Fundraiser

March 18, 2018 2 – 5PM

Adrienne’s ARTistic Experience will be hosting a fundraiser at the Trinity Presbyterian Church (185 Swaggertown Rd, Scotia, NY )

Cost per person is $40 and all proceeds will go to the Hope Soars Foundation to support Parkinson’s Disease research and programs for patients.  I am looking for 35 aspiring painters!

Participants will create a series of three 10″ square canvases, using an acrylic pour technique.  no experience necessary.  Instructions will be provided to create this fund and abstract wall hanging! Just come with a color pallet in mind!

To reserve you spot and for any questions please email Adrienne at

February 19th, 2018 – Saratoga Parkinson’s Support Group

Date: Monday, February 19th, 2018
Time: 2:00 PM
Location: Woodlawn Commons Bldg,
Saratoga Room 2 nd Floor
At Wesley Health Care Center
156 Lawrence Street
Saratoga Springs, NY 12866

This month our Speaker will be Kathy Johnson, Brain Training.
***See below for additional information***
All persons with Parkinson’s, their families, friends and
caregivers are welcome to attend. For additional info, please
call Bruce McClellan at 518-331- 9611.

Welcome to Brain Training
With Kathy Johnson

Monday through Friday
3:45 – 4:45; please come a little early
PNECC Nolan House (the older structure); buzz to get inside
24 Circular street, Saratoga Springs
Kathy:; 518-885- 2007
Open to all! All ages, created to improve memory and attention
1. Come as often as you can; you cannot change the brain by only working on
it once in a while; practice at home in between sessions
2. Easy activities do not change the brain; neither do activities that are
frustrating. We work at a challenging level. Remember, hard is good!
3. The most important part of brain training is the two physical exercises,
Starfish and Slow Angels. Read more about them on the next page
4. Bring a water bottle daily to training. When you yawn or start to do worse,
5. When you find an activity that is especially challenging, cross walk – march
while touching opposite hand to opposite knee
6. Other things that improve memory and attention:
a. Aerobic exercise like walking and running
b. Social activities
c. Reducing and eliminating sugar – it inflames the brain
d. Stress reducing activities like yoga, meditation, walking in nature, etc.
e. Do these daily
7. Have Fun!! The brain finds engaging activities much more motivating than
those that are boring or too difficult. Feel free to ask Kathy how to modify
any activity to work for YOU

Starfish Exercise to integrate the Moro Reflex
May help with:
Visual problems, Light or auditory hypersensitivity, Anxiety, mood swings,
Difficulty accepting criticism, Dislike of change, Emotionally sensitive

1. Lie back on a chair, bean bag or sofa with pillow under back
2. Tilt head back, arms up and out, legs out wide
3. While breathing out, to the count of 5:
a. Bring arms in and crossed, right over left
b. Bring legs in at the same time, right over left
4. While breathing in, to the count of 5, bring arms and legs back out
5. While breathing out, to the count of five
a. Bring arms in and crossed, LEFT over Right
b. Bring legs in at the same time, LEFT over Right
6. Repeat step #4
7. Repeat entire cycle, steps 3 – 6, 2 more times

Slow Angels to integrate the Spinal Galant Reflex

May help with:
Bladder control, Poor concentration, Poor short term memory, Auditory
processing difficulties, Near focusing problems

1. Lie on back with legs closed and hands at the side.
2. Very slowly do the movements of a snow angel, by bringing the arms up
and opening the legs as wide as possible. Arms stay on the floor as much
as possible.
3. Now, for 30 seconds, close the legs and bring the arms to the starting
4. Every 15 seconds, take a second to readjust the arms and legs. This is a
difficult exercise because the arms move over twice as fast as the legs.
5. Repeat 2 more times.

Balance Exercises for People with Parkinson’s Disease



Transcribed from video.

Mah Shi Min, a physiotherapist from Sengkang Health introduces herself, as well as Mr Lee and Mr Ong, who have Parkinson’s disease. Mr Ong will perform the simpler, modified exercises.

Living with Parkinson, you may experience some difficulty with balance. Balance re-training should be incorporated into your exercise programme. Balance training three times a week can help to reduce risk of falls as well as improve your balance.

Exercising safely

Before you begin, here are some tips on how to exercise safely:

  • Pick an appropriate time to exercise
  • Make sure you are well rested, and that your symptoms are well-controlled by your medication
  • Exercise at your own pace
  • Always have a stable support (such as a chair or table that does not move) close by, to hold on to, if needed
  • If you experience pain or difficulty with these exercises, stop and consult your physiotherapist or doctor

Firstly, we will have Mr Lee demonstrate these standing exercises. These should be done in a safe and comfortable manner.

Static standing balance

Stand upright facing a chair or a table.

Standing with your feet shoulder width apart. Hold for 30 seconds.

Stand with your feet together. Keep your body up upright. Hold for 30 seconds.

Tandem standing

Now, Stand with one foot in front of the other, so your heel and toe are in line, keep your body upright and maintain your balance. Try to look straight ahead. Hold for 30 seconds.

Repeat with the other foot in front.

You can progress this exercise into a dynamic one.

Tandem walk

Choose a spot ahead of you and focus on it to keep you steady as you walk by placing your heel just in front of the toe of your other foot.

Repeat for 20 steps.

Single leg stand

Raise one leg so you are balancing on your opposite side. Hold for 10 seconds.

Repeat with the other leg. As you feel steadier, you can balance for a longer time.

For patients whose balance are more severely affected, you may follow the modified version which Mr Ong is demonstrating, using a step board.

Now, we will move on to a series of dynamic balance exercises that involve maintaining your balance whilst moving your body.

Lateral weight shift

Stand with feet shoulder width apart.

Slowly shift your weight to the right as far as possible, without taking a step.

Return to starting position. Then repeat to the left side.

Hold each position for 3 seconds. Repeat 10 times.

Wall leans

Stand with your back against the wall with your feet some distance away.

Pull your body away from the wall using your leg strength, until your body is upright.

Slowly move your hips backwards until it touches the wall again then move your upper body to touch the wall. Your toes should lift up slightly during movement.

Repeat 10 times.

Now, we move onto a series of dynamic balance exercises that involve maintaining your balance whilst moving your feet.

Side stepping

Take a step sideways with one leg, followed by the other leg.

Continue walking sideways for 10 steps.

Repeat in other direction.

Mr Ong is demonstrating a modified version of the exercise.

Backwards walking

Step back leading with your toes, followed by your heel. Repeat on the other leg.

Continue for 10 steps.

Mr Ong is demonstrating a modified version of the exercise.

Alternate stepping

Stand close to a stable support. Place one foot on step and then place it back on the ground.

Repeat with the other leg.

Continue for 10 steps while alternating between legs.

Mr Ong is demonstrating a modified version of the exercise.

Next, we will practice taking a quick saving step, which is what needs to happen automatically if you trip or overbalance. For example, if you trip forward, you need to take a quick step forward to prevent falling over.

Saving steps

Slowly shift your weight as far forwards or sideways as possible, then take a quick step forward.

Hold balance in this position for 3 seconds, then return to start position.

Repeat 5 times.

In this instance, Mr Ong is performing a forward saving step, whereas Mr Lee is performing a side saving step.

Now we will move onto the final series of challenging dynamic balance exercises. These should only be attempted if you can do all the previous exercises without difficulty.

Figure of 8 walking

Place 2 objects about 2m apart on the floor. Walk in a figure of eight pattern and maintain your balance.

Repeat 10 times.

Dual tasking

Practice walking for 2 minutes while performing one of the following tasks:

  1. Motor tasks, such as holding a cup of water
  2. Cognitive tasks, such as:
    – Subtracting a random number by 3.
    – Naming objects e.g. animals, colours.
    – Holding a conversation with another person.

For dual tasking, primary attention should be on balancing and walking, with all other activities as secondary tasks.

Stop if balance or gait pattern is affected.

If you have Parkinson’s disease and have not been referred to a neurological physiotherapist for rehabilitation, you can obtain a referral from your neurologist.

You can find neurological physiotherapists in all acute hospitals.

Remember, it is never too late to start exercising. Begin today and enjoy its benefits! If you have already been exercising daily, keep up the great work!

February 2018 meeting presentation

Steve Hovey gave an informative and inspiring presentation at our February meeting.  He was not able to project his presentation at the meeting.  Here it is for your reference.



Revolar personal alert system

We talked about this product at our February 2018 meeting.

With the click of a button, Revolar can let your loved ones know where you are and if you need help through customizable messages that include your live location. The most discreet panic button yet.

Read more


May 10, 2018 CDPSG meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Refreshments: Linda V., Heather and Art
topic – Laughter is the best medicine. Michael Burns will lead us in improve comedy.

Michael Burns

Michael Burns is the Co-Director and founder of The Mop & Bucket Company .

Before settling in the area, Michael studied theatre at SUNY Purchase, and then improv with David Shepherd in New York, where he directed for the American Modern Dance Theatre and the American Folk Theatre.  He was a member of The Big Apple Experience, a short-lived but cleverly named improv troupe. He has since worked for several upstate theaters including Home Made Theater, The Theatre Barn and Steamer 10 Theatre.

Michael developed (with David Shepherd) the Compass Institution, an improv troupe touring senior centers and hospitals. He directed inmate-written plays for Very Special Arts at Greene Correctional facility, and has created youth theater troupes for several human services agencies. He is the author of First You Sit on the Floor: A Guide to Developing a Youth Theatre Troupe.


So Funny, It Doesn’t Hurt

Can improv be a form of therapy? Some psychologists think so.


Estate Planning and Parkinson’s 101 + New Tax Laws

Establishing your estate plan can be likened to committing to healthy eating. You know that it will benefit your health and quality of life as soon as you commit to it, but revving up to that first day and turning it into a lifestyle can feel like an impossible job.

Read more here